| | Joined: Apr 2013 Posts: 6 Member | OP  Member
Joined: Apr 2013 Posts: 6 | Just diagnosed...surgery is next week to remove tumor... tumor came along with lobular tumors... If i remeber what the doctor said they are a part of the the tumor not extra tuors... my question is what is the % of these tumors that are malignent... or are they called tumors because the doctor knowsit is malignent... in the stun of finding all this out just this past Monday and being sent to my cardiologist today to get clearance for immediate surgery... did i miss something or will the surgery be biopsied and then i will be told if it was cancerous or is a given it is...?
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Welcome, you've come to the right place for answers and support. Many here are more knowledgable than I but, it sounds like the tumor has not yet been biopsied? A tumor is not automatically cancer, only a biopsy can tell if it is, Best to you, hoping for good results.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Apr 2013 Posts: 6 Member | | OP Member
Joined: Apr 2013 Posts: 6 | Thank you... this is happening so fast... i just left my cardiologist's office who cleared me for what the ENT Surgeon refered to as "immediate surgery for removal the tumor", not a biopsy... There has been no biopsy taken... just a scope through the nose...i am guessing the mere size, and the lobular(sp)tumors now clearly visible by simply opening my mouth and saying ahhh, and how fast they appeared and have grown may be the reason for the doctors "immediate surgery" request... After many years of experience isn't there a visual sense and high percentage observation of what the doctor is dealing with and the Biopsy is just a 100% reassurance... | | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Given the timeline and events you describe it seems that indeed they are removing a tumor and since you have not had any tissue biopsy or scans, then I am certain that tumor is going to pathology for a biopsy. The results of that procedure will direct the next steps.
There is nothing you can do until the results come back so please try as hard as you can to not let your mind get all twisted up with is it, is it not cancer. You just need to sit still, don't read any random stuff on the Internet unless you must and then make CERTAIN you go to authoritative sites such as this one, American Cancer Society, or many of the pr4ominent medical institutions such as Memorial Sloane Ketteering, MD Anderson, UCSF, UCLA, etc. Do NOT ready any thing else.
Good luck... Now go play golf.
don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jan 2009 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 71 | I don't know where you are going for treatment, but you should quickly get a second opinion at a cancer center that has a tumor board. If it's important enough to schedule surgery in a week, they can schedule a biopsy in a day or two. Ask for one and more of an explanation of what is going on.
Did you get a CT or PET scan or just a scope?
I only find one occurance of 'lobular' in these forums and it's referring to breast cancer as are most of the hits i get on google.
57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | It migh be talking about "lobular capillary hemangioma of the tongue."
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Apr 2013 Posts: 6 Member | | OP Member
Joined: Apr 2013 Posts: 6 | thanks Don...teeing it up tomorrow... Joe
| | | | | Joined: Apr 2013 Posts: 6 Member | | OP Member
Joined: Apr 2013 Posts: 6 | thank you for the advise on a second opinion... well noted...
the lobular tumors are a for sake of better wording a pimple that grows out of the tumor... they are a contiguous part of the base tongue tumor as we understood the doctor to say...
though i have had this nagging cough and feeling something was stuck in my throat... they were not there two weks ago... now they have the avula at a forty five degree angle and are occupying 65% of my throat opening and appear to be getting bigger each day... the sensation of their presence was nagging before not it is borderline aggrevation... i am in aconstant gag sensation mode...
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Just because it is called a tumor does not mean its cancerous. Im hoping this turns out to be benign. Best wishes with your surgery!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2013 Posts: 19 Member | | Member
Joined: Apr 2013 Posts: 19 | seems ur doc is moving pretty fast. a second opinion is always a good thing. I wish u the best and will be praying that its not cancer.  debbiejeanne
laryngeal cancer in 8/09. 35 rad tremnts no surgery. Recurrence in 2/12. Complete laryngectomy. 10/12 pet scan, clean ned.
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