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Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Thank you very much!!!

OK, its now up to 233 reviews. Considering there are 8000+ members, there is a long way to go to get the reviews to add up.

Since April is Oral Cancer Awareness Month, this is something everyone can do to help spread the word. By helping OCF get noticed, it brings attention to oral cancer. The public needs to be educated about the importance of yearly screenings and early detection. This saves lives!

PLEASE, all members stop and take 2 or 3 minutes to give OCF a 5 star review.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Mar 2013
Posts: 37
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Mar 2013
Posts: 37
Did it!!!


Lori, age 30 (HPV-, non-drinker, non-smoker, non-tobacoo user)
Dx 3/18/13 - T1N0M0 SCC L.Tongue
Tx 4/4/13 - Partial glossectomy (no rad/no chemo).
8/8/13 - Thyroid FNA - benign nodule
12/20/13 - Tongue Biopsy - Mild hyperkeratotic dysplasia
12/26/13 - Lymph FNA - benign (dx Cervical lymphadenopathy)
3/17/14 - Tongue Biopsy - normal tissue
5/5/14 - Tongue Biopsy - (awaiting results)
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
Just wrote my review!


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Oct 2011
Posts: 805
KP5 Offline
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Oct 2011
Posts: 805
Done.


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Thank you!!!

Keep those reviews coming in. Every single one counts and is important. Im hoping to see 500 reviews. With over 8000 members and thousands more who dont register but read the boards this can easily happen if we all participate. If you made a review a couple years ago, its ok to make another one for the 2013 Top Honors. Lets get oral cancer and OCF noticed with the 2013 Top Nonprofits!!!!


Great NonProfits OCF Review


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
OP Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Looks like April turned out to be a very successful month for 5 star reviews on Great Non Profits for the 2013 top honors campaign. So far OCF has gotten 31 5 star reviews with so many wonderful comments. If you did a review a year ago its ok to do another one. With almost 9000 members there are many more who havent yet given OCF a review. If you feel positive about OCF and OCF has helped you please take just a couple minutes to help OCF.


A huge THANK YOU to those who have already given their review, lets keep the momentum going!!! smile

Great NonProfits OCF Review


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
I don't believe I would've made it this far without Brian and my OCF family. Thankful everyday to be apart of this organization


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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