| | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | you ARE the tuffest frack here!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Charm is like the Energizer Bunny - no matter what, he just keeps on going, and going, and going! He also has one of the best attitudes of anyone on this Forum - GO CHARM, GO!
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Every time that I was intubated I was well and truly under and could not imagine being awake through it. You are amazing  I am so glad to hear the surgery was successful. I wish that all the other issues you are suffering disappear soon and that you have a speedy recovery. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Wow Thanks everyone. It turns out I never could get to sleep until 4 pm yesterday after I got home after demanding to be discharged from the hospital. It was simply impossible to sleep in the hospital. I had doctors, nurses, the patient advocate, executives all coming almost every hour since there was also an incident before the surgery when at midnight, a "confused" patient who was wandering the halls and shouting for bacon and eggs for breakfast was being coddled by sympathetic nurses. He began to start going into and out of other patients rooms claiming they were all his rooms, that he had paid for the entire hospital and they all worked for him and they better not forget it. The nurses would chase after him but never restrained him. They caught up with him right outside my door before he came in. Since it turns out I was the one and only room he had not barged into, he became fixated on entering my room. He was truly crazy and deranged and at 1 am, he burst out of his room , right next to mine, and pushed open my door and rushed in. What he did not know was that unlike all the other patients who had IVs and EKG leads and were unable to move out of the bed, I had demanded the night nurse remove my IV, take off my restraining compression leggings, and disconnect the EKG leads. My story, and I am sticking to it, is that I politely and calmly pointed out the error of his ways and it was just a coincidence that all 6 foot two inches of him suddenly bounced out of the room and he landed sprawled in the corridor. He started shouting he had a pistol in his room and he would get it and shoot me dead. At that point, I called security and they moved him off the floor. Again, I never touched him  He just lost his balance. But boy did the hospital send in enough people to apologize and make sure I was okay. True story. EricS can guess the oratorical approach I used. so yes I was wired up beyond belief Charm
Last edited by Charm2017; 03-29-2013 04:48 AM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Charm,
I'm glad you are home where you can get some sleep and heal under the loving care of Bev! You surely had an medical adventure the past few days, and some unneeded "entertainment" thanks to the gentleman in the room next door.
Take care!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | The other guy should have known better than to pick on Charm! So amazing that you can see the humor in an annoying and potentially frightening episode. Hopefully the rest of your recovery will be less dramatic
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Sep 2012 Posts: 381 | Need I reiterate?
Kickin' ass and taking names (metaphorically speaking of course)...
Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Oh My God. I am sitting here shaking my head - I can't imagine someone barging into my room like that, but if they did I would no doubt be frantically hitting some button - not taking care of business myself! Well done.
I am THRILLED to see you posting so vigorously. Are you sure you should be at home?? Mind you - as I type that I am thinking Hospital isn't a great place for you anyway.
I will give thanks today for your successful surgery. I need you to be here. Now get your ass back to bed and get some sleep!! While babies grow when they sleep - patients recover when they sleep. (Bev told me to say that!)
Many Hugs
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Holy crap Charm!!! I can't believe he was restrained LONG before all that had to happen!!
Glad to see all is well and you're still feisty!!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Wow, Charm!! I am just blown away by your hospital adventure! I'm sure all the other patients are glad you took the approach you did! So glad you are home. You are one tough cookie and I'm so glad you are. Hope you get some much needed rest, now.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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