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#163228 03-26-2013 07:04 PM
Joined: Mar 2008
Posts: 3,082
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Well, I am back at my CCC, awaiting an arteroigram to have a burst blood vessel embolised . I was coughing up blood and phlegm the weekend and saw my ENT today who scoped me and saw a scab near my carotoid artery and ordered an emergency admission. I got blood work , CT scan, talked to lots of residents, and waited from 11am until 9 pm for an open bed. I sent my wife home at 5 pm so she could eat and rest up. My son ran over my iPad at 10pm and he will skip his law school classes tomorrow to sit and comfort my wife during the operation. Worse part is that after listing all the terrible things that could go wrong, my wife is very worried and afraid. Even worse is that since the bleeding has stopped , then they might not see anything to fix,.
I have been vomiting the lastbtwomweeks but finally felt good.
I will be out of it tommorrow until late at night. The residents said "comforting" things like we put the catheter in your groin rather than your neck,so is there is a suddenz clot or stroke , it would just be your toes and not your brain.
Keep the faith
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #163229 03-26-2013 07:10 PM
Joined: Feb 2007
Posts: 790
"Above & Beyond" Member (500+ posts)
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Posts: 790
HI Charm,

so sorry to hear you are back in the hospital. I"m so glad you Dr. put you in because it looks like it was an emergency!

Please know that I am thinking of you and hoping you get to go home tomorrow.

Take Care! Kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
Charm2017 #163232 03-26-2013 10:51 PM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
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Oh dear Charm. Sorry to hear this. Yes I can well imagine how scared Bev is.
However, take comfort in the thought that the team is well skilled in this procedure and I'm sure carries it out routinely on many patients each week.
I know you will be ok. Looking forward to your report in the coming days.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Charm2017 #163234 03-26-2013 11:46 PM
Joined: Nov 2006
Posts: 2,671
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Posts: 2,671
Oh my goodness, Charm! Sounds like the docs are taking good are of you and know what they are doing. Sending positive vibes and prayers for everything to go the way it's supposed to today! Get your iPad going as soon as you can after the operation and give us updates.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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I know I can always count on what I like to think of as my "charmed ones" to rally round.
My ENT came at 6:45 and we cried together as I lamented how this third round has left me basically an invalid and she remembered how her husband died of the same bot cancer. She was explaining that even if the interventional radiology surgeon does not see anything to fix, she feels it is a ticking time bomb and would recommend surgery


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #163238 03-27-2013 03:10 AM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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Posts: 10,507
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Charm, I noticed your absence and was concerned. I hate to always bother you or your wife when you arent around. Im so sorry you are going thru yet more issues!

Best wishes with everything!!!! Please post when you can. Your OCF family is there with you rooting you on.

Best wishes!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Charm2017 #163241 03-27-2013 04:33 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Posts: 3,267
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Hi Charm, kind of figured something was going on with you, and was concerned. Sorry to hear of your troubles, but sounds like you are in good hands at the hospital, and have family bedside you. Come back soon for a good argument or debate wink Take care.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Charm2017 #163245 03-27-2013 05:08 AM
Joined: Oct 2012
Posts: 1,275
Likes: 7
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Posts: 1,275
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Sorry to hear you are going through this, dear Charm. I have missed your posts this past little while. Hope you'll be back to form soon. All the very best!


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Charm2017 #163248 03-27-2013 05:20 AM
Joined: Jan 2009
Posts: 476
Platinum Member (300+ posts)
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Joined: Jan 2009
Posts: 476
Wow Charm - this sucks! Praying that the surgeon gets this "issue" resolved and you are out of the hospital soon. It sounds like you are in good hands. Praying for you and your family. Hugs.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
Charm2017 #163249 03-27-2013 05:25 AM
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
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Posts: 701
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Hi, Charm,

I am praying for you and Bev. I am so sorry that you are in the hospital. The bleeding thing is so scary. Clark had a bleed that sent him to the ER last year and I remember how frightened we both were. Glad you are in a safe place and that you have your "A" team on it. I'll be looking for your next post when you are up to it. Rest and get well!


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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