| | Joined: Dec 2012 Posts: 7 Member | OP  Member
Joined: Dec 2012 Posts: 7 | I am a caregiver to my husband who has gone thru this. Would love to be in touch with someone who has gone thru the same.
1/16/12 - diagnosed with Stage IV BOT cancer with 2 nodes involved. HPV+
2/12 - 4/12 - 40 rads and 8 chemo
7/12 - PET clean
10/12 - cancer back at base of tongue
12/17/12 - partial glossectomy, neck dissection
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | If your husband is having problems, post a question here. Or you can do a search to find the info among the thousands of posts and topics. Posting a question will provide several different answers and points of view. It will also have those words stay to help future OC patients who are in the same situation.
OCF is like a second family, we all 'get' you and your situation. Recovery can be difficult. Adjusting to new ways of life isnt easy. The best thing you can do to help with a speedy recovery is to keep up the high nutrition and hydration. By adding high protein whey powder it will help with heeling faster. A speech pathologist and physical therapist are also going to be great to have around while recovering from what your husband has gone thru.
Caregiving is a difficult job, dont forget to take some time for you once in a while too.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | There are quite a few of us here and there are several BOT recurrence members as well who've had second rounds of chemo and rads and surgery - I'm sure someone will pop by - charm? Paul? Welcome - there are some terrific resources here. Take care.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Welcome, Chuckles. I had tonsil, BOT, lymph involvement, which resolved from my initial treatment from chemo alone, but had several recurrences in the lymph nodes, resulting in a radical neck dissection, and a few others. Usually for recurrences, surgery is the best option. If you have any questions, just ask, someone will try to answer or direct to another that can.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | chuckles
It's unclear to me whether you want discussions about your husband's issues or the very real and different yet intertwined issues of caregivers. If it is the latter, then try posting your issue in a separate forum here, called caregivers . It's description says it all
[quote]Family members and caretakers can discuss their own personal issues and find support here. Caretakers have their own fears and problems that are often better discussed with someone other than the patient.[/quote]
But if it's things about your husband's TX, there are way too many of us who have have the cancer come back so if there is something specific, post and we will try our best to answer you.
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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