#16287 08-31-2004 11:53 AM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) |  Senior Member (75+ posts)
Joined: Jun 2004 Posts: 85 | Hello Terry,
I know you have alot of doubts, concerns and questions. Great! Keep firing them in our direction and you will have no end of personal experiences coming back at you. I understand your reluctance to have a PEG, but unless you can force yourself to drink water even though it may taste like oil, I would have one.
It is encouraging that you have had a PET scan. It tells me you have good insurance and doctors that are leaving nothing to chance. I can't imagine you would have any Rad Treatment other than IMRT, also. I wouldn't waste your mental effort on trying to figure out the why of your recurrance. Concentrate on bulking up (out) and maintaining a positive attitude.
You have support here through the Forum, our thoughts and our prayers.
David
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#16288 08-31-2004 04:01 PM | Joined: Mar 2003 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 64 | I don't blame you for wanting to stay in GB for the treatment. Can the doctors there coordinate with those at the Mayo Clinic? Is the GB center a part of the U of Wisconsin Comprehensive Cancer Center?
We're from Wausau, so have special concern for you. Keep us all informed how your treatment progresses. My husband is the patient. He says he would recommend the feeding tube. I am sure it would be easier to have it in place before you start the radiation and chemo.
Thinking of you.
Lowanne | | |
#16289 09-01-2004 12:27 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | I have advised many on Peg tube. You will be ahead in the game to either get the tube installed or consult with a gastroenterologist, hold he/she in reserve. I opted for the latter. I consulted with a gastro in a large practice and was assured that when I was ready for the peg it would be installed with 24 hours after calling and it was.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#16290 09-02-2004 03:47 AM | Joined: Jul 2004 Posts: 12 Member | | OP Member
Joined: Jul 2004 Posts: 12 | Wow, I am impressed with all the responses and best wishes received to date. Thank you all very much for your support.
I start IMRT on 7 September and am scheduled for 7 weeks at 5 days per week. I will also be given
Cisplatin on days 1, 22 and 45. Like all of you I am uncertain exactly what to expect as I go through treatment, even though the Doctors have told me likely scenario's.
The reason I decided to stay at home for the treatment is that Mayo would offer the identical treatment. The local cancer center has discussed my condition with Mayo Doctors and all agree there is no reason for me to live at Mayo for 7 plus weeks. I am trying to eat everything I can get my hands on now in anticipation of the weight loss. From your comments I am leaning toward having the PEG inserted, but will make that decision tomorrow when I meet with my Doctors one last time before I begin treatment.
All the best.
Terry
Terry
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#16291 09-02-2004 03:55 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Terry, Enjoy all the great tastes now...  Just remember if you have any questions to fire away. Your treatment will be over before you know it...then the real fun begins. It will be tough but because you have come here you will never have to travel the path in the dark. Best wishes for a speedy recovery and success in blasting the beast. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Apr 2011 Posts: 2 Member | | Member
Joined: Apr 2011 Posts: 2 | Hi Terry. Mom mother was diagnosed with SCC after using Enbrel for 3 years for treatment of rheumatoid arthritis. One oncologist has mentioned a possible link. The rheumatologist tht prescribed the Enbrel denied any link. I've found a website that you may be interested in. A lot of people have posted medical problems they feel are directly related to Enbrel. If you're interested the site is aboutlawsuits.com. I think you'll find it pretty informative.
Caregiver for 78 year old mother diagnosed with SCC two yrs ago, followed by lung cancer diagnosis 1 yr ago. Treatment of OC surgery (partial glosectomy; full neck dissection; left mandible replacement; lymph nodes removed; radiation.
Treatment for LC chemo & radiation.
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