| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I had a local Dr change this feeding tube a couple of weeks ago. This afternoon as I was putting lunch thru it, I felt something awfully wet on my stomache. I pujjed my shirt up and my tee shirt was soaked with Jevity. Ths Dr put a smaller feeding tube in for the replacement. I had a 6 and he put in 20 which is much smaller. I have been having trouble with it leaking and keep a bandage around it. This is the worst it has been. I have seen the Dr about it and I think he was lost or confused. I wanted himt to put a lrger one in. He told me he didn't do it because it would reqire using a scope to do it. LOL I told him I have had many of those and usually every 3 to 6 months. This guy wants to wait until May to see me again. Maybe I had better get the Dr in Pittsburgh UPMC to do this procedutre to be sure it is done right. He is the Dr that put the feeding tube in. Anyone else have this problem?? It not only is annoying but has a terrible odor and the bandage is always wet. I never had a problem until the Dr put this smaller one in.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hey how are you feeling - other than frustrated? Mersa? Hopefully they come up with something for your jaw... Hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jim, good to hear from you!
This cant be put off until May. Having the wet formula sitting there like that is bound to cause an infection which can turn into a serious medical problem.
Call your gastro doc and explain you have a problem. They can easily swap it out and put another one in. Do NOT wait! Its an emergency situation and needs attention.
Good luck my friend!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | I think Jim means MRSA - methicillin resistant streptococcus aureus.
A common bacteria that is very resistant to antibiotics and spreads readily in hospitals between patients who are immunocompromised. Is also very rife in the community.
Jim, I agree with Christine's advice. This needs urgent attention.
Hope you can get it sorted quickly. Even turn up at your local emergency department.
Take care,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | EZJim
You cannot get a break can you? When you contact UPMC, ask about a button or low profile gastronomy tube. I love my AMT mini one.
It needs to be done right. I am so glad my wife can change my button now right at home
Hang in there.
Charm
Last edited by Charm2017; 03-16-2013 04:06 AM. Reason: tyo
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thanks for the advice. A local Gastro Dr is the one who did this. I think as you say. I will call UPMC and get this one to do it. He is the one who put it in. I think having 1/3 less stomache is one of the causes. It's wrapped around my esophagus because of Barretts. Nice to be getting advice from my friends, Thank you all again.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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