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Joined: Feb 2013
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I saw my radiation oncologist at Stanford and she said she was not familiar with the benefits of zinc, but it can't hurt so to continue if I wished. I have a funny story related to taste. Yesterday I went to Jamba Juice to get a smoothie and asked the gal to give me the highest calorie one she could make. She said she had a high protein one made with peanut butter. I thought that sounded terrible, but since I can't taste, I said ok. Well, when I took a big sip, I tasted peanut butter! It was such a surprise. However, it did taste nasty so I couldn't finish it. But still, I'll take that nasty taste any day! smile I'll keep you all posted if I taste anything else.


Teacher Karen
DX: SCC of right maxillary alveolar ridge, 9/2010.
Surgery 11/2010, removal of 4 teeth and gum.
Surgery 11/2012, removal of 3 teeth and gum.
IMRT 1/2013-2/2013
Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum.
Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection.
Cetuximab based chemoradiation 64.8 Gy to resection bed.
Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection
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Interesting about the zinc...how much is recommended?


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
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That's great Karen. Peanut butter is a great taste!!! Maybe next time just get a peanut butter one!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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Try Peanut Punch,...ice, cup milk, Tbs condensed milk, Tbs peanut butter, dash nutmeg, cinnamon, if desired, can put banana in it too. Blend.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Karen, could you tell if it was the peanut butter that was nasty or was it the milk? My husband is about 5 weeks post-radiation and his taste is very, very slowly starting to come back, and anything milk-based is extremely chalky. He can't taste peanut butter at all and he can't handle the texture yet but it's such a good source of protein that I make him smoothies using powdered peanut butter (this kind: http://amzn.to/W2oirG). Because of his milk aversion I use vanilla-flavored soy milk, a couple of teaspoons of peanut butter powder, a scoop of vanilla whey powder (why he can drink this and not milk, I don't know, but the taste doesn't bother him), a Boost Plus (higher calories), and a packet of Benecalorie (this stuff: http://bit.ly/ZFUssj). Altogether it's like 900 calories so he gets a couple of those a day. Sometimes I throw a banana in, too.

He's also very anxious for his taste to return. He spends a lot of time on the internet looking up recipes he wants me to try when he can eat normally again. smile


Husband diagnosed 10/11/12 with Stage III oral tongue SCC, T3N1M0 (HPV negative). 35 years old, non-smoker, non-drinker.
Hemiglossectomy and left selective neck dissection (levels 2, 3, and 4) on 11/01/12.
Chemo (Cisplatin x 3) finished 1/23/13.
Radiation finished 1/28/13.
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Heather, thanks for the powdered peanut butter suggestion! I didnt know there was such a thing.

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Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Thanks Heather for the recipe. Milk was one of the only things I did like for awhile, so I think it was the peanut butter. Isn't it interesting how different each one of us is when it comes to our taste returning! I was craving chinese food last night, and even though I couldn't really taste it, I was able to distinguish between the sweet and savory. I keep experimenting with "solid" foods because I really want to be off the liquid diet. Best wishes to your husband as he continues his recovery. I just finished radiation on February 8th, so we're close to the same schedule. And thank you for your support of your husband. I don't know what I would have done without a loving supportive husband to see me through this. You are appreciated more than you could know, I'm sure smile


Teacher Karen
DX: SCC of right maxillary alveolar ridge, 9/2010.
Surgery 11/2010, removal of 4 teeth and gum.
Surgery 11/2012, removal of 3 teeth and gum.
IMRT 1/2013-2/2013
Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum.
Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection.
Cetuximab based chemoradiation 64.8 Gy to resection bed.
Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection
Joined: Jan 2013
Posts: 1,293
Likes: 1
Patient Advocate (1000+ posts)
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It seems any nuts can be pulverized in a blender, especially a Vita-Mix and you can create any custom nut power you want to add to blenderized drinks.
don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Jul 2012
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I think you need to cook the nuts first, if not already done. The pulse rate may be different, in short bursts, as not to release oils to make it butter.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Oct 2012
Posts: 1,275
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Will pulverized nuts dissolve in fluid or will they stay as little bits of nuts? That can be annoying if you are trying to swallow them with a sore throat and may clog up the PEG if you put it through the tube.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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