| | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) |  Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Seth, John was in a PDL1 trial. Although it did not work for him, there were others for whom there was some tumour reduction or the tumour stopped growing. This was information given by his oncologist who is in charge of Phase 1 trials at the hospital. With the trial drug, there were few side effects -- certainly nothing like chemo -- although John did have diarrhea for two or three days after which Imodium took care of. Do talk to your doctor about what results they have seen in the patients in their trial group.
Sending you some positive vibes across the pond and for sure hoping for the best for you.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Seth,
I think of you often and am humbled by your spirit and attitude. Wishing you many more option,s and an eventual cure.
All the best,
Rob
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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