#16233 08-18-2004 12:49 PM | Joined: Apr 2002 Posts: 73 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2002 Posts: 73 | Hi All!
I want to reintroduce myself. Its now been 3 years (yes!) since I finished my treatment for reoccurance of tongue cancer. This board helped me a tremendous amount. I haven't posted or read messages in some time. I'm not sure why, its probably because I've been trying to get back to some type of "normal" life again and find I have so little energy that when I take on one thing I have to let something else go. However, I have greatly missed OCF and I've decided that I really need to spend some time here.
be seeing you! (in print anyway)
ilene
ilene
SCC stage 1 1987, 1/4 of tongue removed, neck dissection, SCC stage 3 2000, another 1/4+ removed second neck dissection, radiation.
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#16234 08-18-2004 01:53 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hello Ilene It is wonderful to read that after 3 years you are back and feeling better. I find the board interesting and supportive, look forward to seeing more from you. Was your second neck dissection on the same side? From Helen with love 
RHTonsil SCC Stage IV tx completed May 03
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#16235 08-18-2004 04:02 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Neighbor! Good to hear from you.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#16236 08-18-2004 06:19 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | As a tongue cancer battler, it's GREAT and INSPIRING to see someone with initial diagnosis of 1987 still kicking strong!!!
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#16237 08-18-2004 10:44 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hi Ilene,
Great to hear you're doing so well after 3 years of battling this dreadful disease. I had a total glossectomy in July 2003 and your note and survivorship is such an inspiration to me! Keep up the good work and please don't be a stranger - it's good to see you're back!
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#16238 08-19-2004 01:20 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Ilene,
Welcome back to this site. If you haven't been here in awhile, I'm sure you see some pretty dramatic growth in numbers and content in the meantime. Please share your experiences whenever you can.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#16239 08-19-2004 05:20 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Welcome back Ilene,
Nice to hear you are doing so well!! Three years!!
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#16240 08-19-2004 08:45 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Ilene, soooooooooo nice to hear from you! Glad you are doing well, God Bless and Take Care, Love, Carol p.s. I too am a tongue cancer survivor, two years and 3 months!!!! Woooooooo-hooooooooo!!!!!!!!!! SMILE!!!!!!!!!!!!!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#16241 08-20-2004 06:26 AM | Joined: Aug 2002 Posts: 246 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2002 Posts: 246 | HI Ilene!
Awesome news! Celebrate!
Kim
kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"
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#16242 08-21-2004 12:52 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Welcome back Ilene.
keep the faith
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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