| Joined: Feb 2013 Posts: 6 Member | OP Member Joined: Feb 2013 Posts: 6 | I have had a severe sore throat for almost 3 weeks now, without having a cold or flu. I have noticed that over the course of 3 weeks, I have had more and more pain in the right side of my throat, the right side of my face up to my ear hurts, I have had trouble swallowing without choking, and I have been drooling during the day in addition to nighttime (which has been really embarassing). As far as hoarseness, people have mentioned it during choir practice at church, but I assumed it was because of the sore throat, so I haven't thought much of it.
I have tried practically every home remedy, OTC remedy, and 2 different prescription pain meds (Ibuprofen and Tylenol w/Codeine) the Emergency Room gave me, but nothing has got rid of the sore throat at all. I also tested negative for the flu, strep, and mono.
I went to my doctor and she checked everything, and told me that all of my symptoms point toward throat cancer (since she couldn't find an abcess or anything like that), but she has to wait for some test results to come back from the ear, nose, throat doctor she refered me to. I am scared! My dad had lung cancer and died within 10 months of being diagnosed. I don't know what to do! All I know of throat cancer is people not being able to talk anymore and having to use a traceotomy to breathe. HELP!
Jessie | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Glad to hear that you have done all the right things - going going to doctor and ENT.
I am extremely surprised that your doctor would mention throat cancer with obviously NO conclusive evidence - no ct, mri or pet scans, no biopsies and no test results!! That is a wild leap for a persistent sore throat. I am not saying that cancer is beyond the realm of possibilities, but it is far far too early to diagnose cancer.
Keep pursuing a correct documented diagnosis, but in the meantime try very hard not to worry. I am the Queen of Worry around here and I can ASSURE you that it has NEVER helped me one bit - all it does is saps today of its joy. We are here for you. We have been where you are right now -know you are not alone and we will be here as you proceed in the diagnosis process.
Breathe deeply and carry on calmly. Hugs Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I'm sorry about your father, Jessie, and I'm sure it adds to your worries, but agree with what Donna said. There are many things that can cause your ailments anywhere from a tooth infection, abcess, ear pain, tinnitus, TMJ. Good luck with the results, and you did the right thing by getting it checked out. Whatever the outcome, if you are smoker, stopping will reduce your risks, complications, delay in healing for any form of treatment, even non cancerous ones. Most head and neck cancers are squamous cell carcinoma, SCC, 90 percent, and this is due to environmental exposure, social behavior, and viruses. Heredity is not thought to be a factor, although genetics are being looked into.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jesse, Im sorry for the loss of your father.
I know you are worried but please calm down. By getting upset it wont help you at all. Stress will only make your symptoms appear to be worse. I would suggest going to a ENT who is familiar with treating oral cancer patients. They can do a scope and see if there are any abnormalities. If they see something then it will take a biopsy to determine if it is cancerous. The testing can take a few weeks until you will finally know whats wrong, so staying calm is important.
Your statement about throat cancer patients living their lives with a trach isnt completely accurate. Not all patients who have throat cancer will end up like that. Many are successfully treated and go on to live good productive lives, speaking and breathing just fine on their own. This is getting way ahead of everything as you do not even know whats wrong yet. Please try not to jump to conclusions. Especially hard to avoid is the "what if" way of thinking.
Hope you will get an answer soon.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Feb 2013 Posts: 6 Member | OP Member Joined: Feb 2013 Posts: 6 | Thank you so much for your replies. I have been scared and frustrated at this severe sore throat, because it seems like all the common sore throat related illnesses have come back negative. My doctor did do a thyroid test on me, because she said that the spot on the right side of my neck where I have said the pain is in my throat is where your thyroid is. Still haven't got the results of this yet (hopefully, they will be here by this afternoon).
One big problem I hate right now is producing so much saliva that I am drooling, and when I swallow the large amount, it causes me choke. Its like once I swallow, my mouth gushes out even more saliva. Its embarassing to be drooling during the day when I am out and about. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Sounds like your throat is. Very irritated hence the drool. Did they scope you? Take a tissue sample? Send you for a scan?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | There are many causes for hypersalivation and reduction of saliva clearance, some which can be caused by medications, toxins, illness such as oral infections, ulcers, abscesses, tonsilitis, and other medical conditions. Tell your doctor, which may help in your diagnosis. Rinsing your mouth, and frequent brushing may help. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Feb 2013 Posts: 6 Member | OP Member Joined: Feb 2013 Posts: 6 | [quote=Cheryld]Sounds like your throat is. Very irritated hence the drool. Did they scope you? Take a tissue sample? Send you for a scan? [/quote]
I am still waiting for an appointment with a ENT doctor, who will do the scope test. I am just getting so sick of this severe pain and drooling and choking all day and all night long. I have lost sleep because I am gagging so much during the night. It feels like whatever lump is in the right side of my throat keeps hitting my windpipe at night when I am laying down or on my side, causing me to gasp for air several times a night. I do have a problem with producing too much stomach acid and bile in addition to having gastroparesis, as a result of my birth defect, but have never had any throat pain associated with it, so I don't think its the acid causing the problem. I just hope they figure out what is wrong soon.
Jessie
Last edited by Jessie; 03-02-2013 12:25 AM.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Couple of questions - how old are you? And do you smoke ? If you are in your forties or above - then there's a possibility of HPV+ BOT cancer - the demographics is usually forties and up. If you are a heavy smoker it is also possible. Mind you usually this is a later in life situation - though not always. There is also the possibility of thyroid cancer. A lump in the throat is always concerning. Though is could be benign or just swollen due to some etiology. For a dr. To jump to cancer without scoping etc is more of a worse case scenario DX rather than an accurate one. It really could be anything. For a dr, to say that he's basing it on personal information - your age, history health etc, basically you match a demographic - and present with a certain symptomology. But that doesn't mean he's right. Without a scope, and scans it only a guess. Please make sure the ENT they send you to is one familiar with oral cancer (not all are) and push to get in ASAP. Ask them to put you on a cancellation list. I'm not saying this because I beleive its cancer, but because its obviously causing major worry and disruption of your day to day life. Take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2013 Posts: 6 Member | OP Member Joined: Feb 2013 Posts: 6 | [quote=Cheryld]Couple of questions - how old are you? And do you smoke ? If you are in your forties or above - then there's a possibility of HPV+ BOT cancer - the demographics is usually forties and up. If you are a heavy smoker it is also possible. Mind you usually this is a later in life situation - though not always. There is also the possibility of thyroid cancer. A lump in the throat is always concerning. Though is could be benign or just swollen due to some etiology. For a dr. To jump to cancer without scoping etc is more of a worse case scenario DX rather than an accurate one. It really could be anything. For a dr, to say that he's basing it on personal information - your age, history health etc, basically you match a demographic - and present with a certain symptomology. But that doesn't mean he's right. Without a scope, and scans it only a guess. Please make sure the ENT they send you to is one familiar with oral cancer (not all are) and push to get in ASAP. Ask them to put you on a cancellation list. I'm not saying this because I beleive its cancer, but because its obviously causing major worry and disruption of your day to day life. Take care! [/quote] I'm 31 years old and don't smoke or drink. | | |
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