| Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Andy,
Thanks for signing in even though you had a very brief period of getting diagnosed and treated. Hearing positive outcome stories are always encouraging.
Glad you caught it early and the surgery cleared it out. I'm sure you don't need any reminders from us here to stay current on those checkups and tests down the road. Congrats!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Jan 2013 Posts: 10 Member | OP Member Joined: Jan 2013 Posts: 10 | Don,
Thanks! While this ordeal did fly by, I have this nagging feeling that it isn't over. I hope and pray that it is, I just don't want it to come back. Until you are labeled with cancer, you really cant know! A couple of analogies I came up with. Cancer is like rust in a car, you really know if you have gotten it all. The other analogy for me, while I was walking around with a tumor on my tongue, was that I felt like a bomb was inside my face. It is the most insane feeling.
I trust your treatments will go well Don!
Oral Tongue Cancer, SSC, T1 1.5cm diameter,.3cm deep,HPV neg DX: Dec 21, 2012 Surgery: partial glossectomy +-15%, Jan 4, 2013 Oral Lichen Planus since 2008'sh
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there... I have been there... it takes a while to get past it. With every year and clean check up that passes you get a little less freaked. For me it is still relatively early in the healing process. Two weeks from now will be the second year anniversary since my surgery. I have those moments of fear still. But at some point you have to stop giving your life over to the diagnosis and live... otherwise the time you do have is a waste. Yes we've had Cancer and yes it could come back, but we could also be hit my a truck tomorrow... hugs... Mind you the next time I have a mouth sore or a cold I'll still have that moment of panic and need to be talked down.. hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2013 Posts: 10 Member | OP Member Joined: Jan 2013 Posts: 10 | Just an update.... I am now 4.5 weeks post op, and everything is healing as it should. Swelling is gone, stitches are gone, and my speech is 95% except for S's. Frustrating a little, but I am blessed, and not complaining!
Now comes the waiting game..... I stare at the void where the cancer was sometimes, waiting for it to erupt and fill the void the surgeon left. But I'm optimistic.....and overly dramatic!!
I hope everyone is doing the best they can in their own situation, as my thoughts are with everyone going through this experience.
Andy
Oral Tongue Cancer, SSC, T1 1.5cm diameter,.3cm deep,HPV neg DX: Dec 21, 2012 Surgery: partial glossectomy +-15%, Jan 4, 2013 Oral Lichen Planus since 2008'sh
| | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | I'm with ya. I have my first real post-op check-up, scopes etc., on Monday. Trying not to think about it...talk about a pink elephant in the room!
Stay positive and keep strong.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | So glad you're doing well! No rads and chemo
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | [quote=Cheryld]So glad you're doing well! No rads and chemo [/quote]that is what I was wondering. Xlnt if no need :-)
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Jan 2013 Posts: 10 Member | OP Member Joined: Jan 2013 Posts: 10 | No chemo or rad. Getting a pet and addition ct scans over the next several months.
Oral Tongue Cancer, SSC, T1 1.5cm diameter,.3cm deep,HPV neg DX: Dec 21, 2012 Surgery: partial glossectomy +-15%, Jan 4, 2013 Oral Lichen Planus since 2008'sh
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | At this time there have not been any studies done that I am aware of which have linked trauma to SCC. We have seen many patients come thru here who have had their tumors begin where the denture rubs them inside their mouth. When you bit your tongue that is what caused the LCP (sorry I didnt understand what it was before, dun!). The LCP turned into SCC, but the original cause really was when you bit your tongue.
You are very fortunate! You didnt let your nervousness get in the way of seeing the doctor. You stayed on top of it which not all patients do. You are very lucky not to need further treatment.
Best wishes with your continued recovery! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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