| Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | OP "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | Hi all,
I thought I would pass on a treatment I just started to improve the mobility, and decrease tightness in my neck. It is a combined treatment with 2 different types of lasers, and the general gist is that the laser makes tiny holes in the scar tissue to allow new healthy collagen to form (like aerating your lawn).
As it was explained to me, a scar forms because it is the body's immediate reaction to trauma, and the first instinct is to close the wound immediately. As such, the collagen forms thick bundles. This has the result of pulling skin tighter, which accounts for the tightness in the incision and surrounding areas.
In my case (not sure everyone else has this), I feel like I am wearing a choke collar all the time, which in turn limits my mobility. In addition, it pulls my other skin, so that the left side of my mouth and chin are pulled down. It's noticible when I smile, and it looks a bit like I have had a stroke. I also note that in my stretching excercises, I can feel the pull on the "new" tongue, as all is connected to the floor of the mouth.
The laser is called Ultra Pulse (SCAARS - Synergistic Coagulation and Ablation for Advanced Resurfacing - yep, it's a mouthful). It takes numerous treatments, and can be done in 3-6 month intervals.
The side benefit, is that it is also supposed to reduce the appearance of the scarring. Nice, but not my main focus.
This does not replace PT, it's an adjunct.
I have only had my first treatment, but I will let you all know the results as it goes along.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | That sounds awesome, TIna! I continue to be amazed at all that one learns just by coming to this site. Thanks for sharing.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Yes let me know I would be very interested. Works on a similar principle to acupuncture as that is how my naturopath used to work, he'd stab me in the scar tissue, to help bring in blood flow. Good luck let us know if it works.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | OP "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | Ok, so here is the update on the laser...
The treatements are 3-6 months apart, but are combined with 2 lasers (one can be more often, but generally they are done together), and generally take a total of 2 years.
After the first laser treatment on the neck scars, I was concerned because everything seemed to get tighter, but meeting with my surgeon, he advised that this was likely to to nerve stimulation.
There has been a reduction in the raised portions of the scars (they were very pronounced especially on one side of my neck), and the redness has faded. The "cosmetic" side is a perk, but not what I am really interested in.
The mobility has not yet improved, but I've only been once so that is to be expected.
My next session is in April, and I'm hoping to have more to report then.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Interesting so it's meant to break up scar tissue!?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | OP "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | More updates on the laser. I am seeing some increased mobility in my neck. The "choking" sensattion is reducing and feels more like tightness now. It's hard to say whether this is simply due to the passage of time, or the laser itself.
The scarring is definitely less noticable and less raised.
Yes, Cheryl, the idea is to punch microscopic holes in the scar tissue to break it down and let new, healthy, "non-trauma" collagen form.
I am having the double laser in mid June, so I will post a follow up then.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Yes it is the same principle as acupuncture.. It seemed to help me  good luck hope it keeps helping.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I had such a horrible experience with the laser. After the first treatment is was as if I had a reverse whiplash with the pain in the front of the neck. I couldn't get up off the floor because I couldn't raise my head. It lasted for several days. They think a nerve was compromised by the laser. I already had significant fibrosis and atrophy of my SCM muscle in the left side which is probably what happened.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | OP "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | Uptown, this is pretty new. Was it perhaps a different type of laser? (see my first post which identifies the type).
I had no pain from this, except a mild discomfort when the laser was operating.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | It was the ultrpulse plus cold laser with electristim. It was about 6 months ago. I had lost a OT of muscle by then and had a lot of neuropathy issues.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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