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Joined: Jan 2011
Posts: 123
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Joined: Jan 2011
Posts: 123
Bette I am so sorry to read this and that you are now part of this subgroup. Like you said, he is no longer suffering and he was so courageous as were you. He was fortunate to have you by his side. Please take time for yourself and we are here for you.


Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
Joined: May 2012
Posts: 18
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Posts: 18
My heart goes out to you in the loss of your husband, i lost my husband joel 6 months ago and also was the love of my life, almost 30 years married, i have learned to stay busy or when i am home alone, i tend to miss him so much and think about him. mornings seem to be worse for me for some reason. i am trying to pick up the pieces with the help of good family and friends, but i have to believe he is not in pain anymore and my faith helps to keep me going.


CG to Joel 1st tumor flr of mouth 1998, 38 rad trmts 2nd tumor back of mouth/throat, rad neck, part remvl of jaw, soft palate rmvl, no chemo or rad, has a peg tube since dec 2011.Frmr smkr 25yrs ago, drinker, worked in HVAC indus 35yrs. 3rd dx on 6/20/12, hospice6/29/12, died July 17, 2012
Joined: Oct 2012
Posts: 118
Bette Offline OP
Senior Member (100+ posts)
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Joined: Oct 2012
Posts: 118
The days drag on. The nights are even longer. It's so very hard to go from being a 24/7 caregiver to having nothing. I miss him so much.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Joined: Mar 2011
Posts: 1,024
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"OCF Kiwi Down Under"
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Joined: Mar 2011
Posts: 1,024
Oh Bette, I know you miss Reggie.
You are in the position none of us caregivers want to be in. I can only imagine how difficult this is for you.
Do you have a support group of girlfriends who you can spend the days with? Meeting for lunch and coffees. Walks, where you can just talk about Reggie and your grief. Are any family nearby? Or can you go stay with family for a while?
I know you have to get on with your life, but grieve and talk about Reggie to whoever will listen.
Chemically assisted sleep helps too.
I'm thinking of you Bette,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: May 2012
Posts: 18
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Posts: 18
I feel your pain, i am still struggling with missing my husband as well...were never apart for very long...a lot of emptiness. I am doing my best to work through it, but staying busy is what is working for me, took up zumba to try and let out my frustrations and to help get me in shape and be able to sleep at night, it is lonely at night, since my daughter is grown and not here with me. It has been 6 months for me, and i still cry when i am home alone or if someone i know talks about him, not sure when that will get better.


CG to Joel 1st tumor flr of mouth 1998, 38 rad trmts 2nd tumor back of mouth/throat, rad neck, part remvl of jaw, soft palate rmvl, no chemo or rad, has a peg tube since dec 2011.Frmr smkr 25yrs ago, drinker, worked in HVAC indus 35yrs. 3rd dx on 6/20/12, hospice6/29/12, died July 17, 2012
Joined: Oct 2012
Posts: 118
Bette Offline OP
Senior Member (100+ posts)
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Joined: Oct 2012
Posts: 118
I am so lost. To go from a 24/7 caregiver to nothing is so very hard. To loose the love of my life so very suddenly when I thought he would pull through and get better is so very hard. The two of us had so many plans for when he got better. Traveling in our new motorhome and enjoying his recent retirement from 43 years with the phone company. I just miss him so very much and wish I could get a muligan. I cry all the time and need him in my life. I hope someday this will all get better....


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
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Posts: 1,024
Dear Bette, I have been thinking of you. I know this is very difficult for you and it is still early days. Would you consider seeing a grief counsellor?
I think it is normal to cry all the time at this stage. Hell, I cried for weeks after each of Kris's diagnosis. But the important thing is that you have longer and longer times of not crying. Would Reggie like to see you so distraught? I'm sure he wants you to live and enjoy your life, full of memories of your life together.
You can still use that motor home. Grab one of your girlfriends- maybe she is widowed too - and do those trips you had planned. Take a grandchild with you for company. Forge new memories and share Reggie with them.
You are a strong woman. You will get through this.
My thoughts are with you,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
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Joined: Jun 2007
Posts: 10,507
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Ive also been thinking of you, Bette. Was hoping you were able to find some peace of mind thru this tragedy. I just cant imagine how hard it must be for you.

One of my close friends lost her husband very unexpectedly. She was devastated. It took her a very long time even with seeing a grief counselor to come to terms with losing her husband. Its not something that has a timetable. It will take lots of time to adjust to such a traumatic major life event.

You have many friends here so please dont be a stranger. We all care.

(((HUGS)))



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Joined: Nov 2006
Posts: 2,671
Bette - it will get better and time will soften the hurt you are feeling. Stay close to family and friends that can help you share the grief. I'm sure Reggie is close to you in spirit, holding you in his arms and helping to soften the sadness. Such good and thoughtful suggestions you have received above. Take your own time to get thru the sadness and small steps toward the happier moments you shared with Reggie. Stay with us here so we know how you are doing.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Oct 2012
Posts: 118
Bette Offline OP
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Just thought I would check in and let everyone know that I am struggling. Life is so out of balance. Not having Reggie here with me doing just the ordinary of things together is very painful. I have decided to go seek the consultation of a medium/pyshic. I hope that will help with this terrible guilt that I carry with me. If only I had been awake the night he passed maybe i could have kept him alive. I know he didn't want to die. We had so any plans and dreams.................


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
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