#16112 08-03-2004 11:50 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | DanQ, Welcome back to the site. Sorry you need the support here, but at least you came to the right place. It is good that your attitude is so positive. That will have a good effect on your treatment and the results. If possible, would suggest you have chemo along with rad as the last I heard that treatment is giving very good results. I am also surprised you didn't have rad and chemo before. Hopefully this time you can get it all out.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#16113 08-04-2004 02:41 AM | Joined: Mar 2003 Posts: 11 Member | | OP Member
Joined: Mar 2003 Posts: 11 | well, i never did go to a cancer center, i had an excellent surgeon, but i never did see an oncologist, which i guess is really bonkers. so, i have a meeting today at 3 with head and neck rad specialist at LIJ (LI,NY) and it's in the oncology center there, so i'll talk with this doc ask about combo therapy, and grab me the nearest oncologist. i yai yai.
Dan-Q | | |
#16114 08-04-2004 07:50 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dan Q ...best of luck to you ..if attitude helps you have it in truckloads !
Just keep on keepin` on.
Cheers
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#16115 08-04-2004 08:46 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Dan,
Memorial Sloan Kettering has a few Long Island locations. I think my Radiation Oncologist is covering at one of them. Let me know if you need a name. Since you are in the Metro-NY area, MSKCC should be one of your opinions. My $.02, Chemo/Radiation fast! My medical oncologist is the head and neck guy at MSKCC if you need his number.
Glenn
Westchester County | | |
#16116 08-04-2004 05:03 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Dan, Glenn said it all - get into treatment, dual mode, fast! And when you do, there are hundreds of us here who can tell you in advance what to expect, and answer all questions along the way. Just get started, okay? | | |
#16117 08-05-2004 02:50 AM | Joined: Mar 2003 Posts: 11 Member | | OP Member
Joined: Mar 2003 Posts: 11 | I received some good news yesterday, the slides were reviewed by the chief of oncology and i was downgraded to a T1.
i met yesterday with the radiation oncologist. Radiation planning starts aug 12. My case is going to be reviewed by the tumor board at LIJ next week and they will check everything out and decide if i'm going in the right direction with treatment.
so i guess i'm on my way to hell, but i'll just be passing through.
dan-q | | |
#16118 08-05-2004 04:14 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Dan-
Great news! Just passing through is what you have to remember. It might take a month or two but it doesn't last forever. You'll know that they are hitting the beast with everything they've got this time! Hang in there and we are here to help you through it!! There's a lot of hints in the archives to get you through that hell and the fight is worth it! -
Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#16119 08-06-2004 05:40 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Dan,
It may get tough but many have traveled the road before you. I am hoping for the best possible treatment for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16120 08-06-2004 11:54 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Dan, Stage I, what great news! All you have to do now is get a little treatment and bingo, gone in 60 Seconds, or so. Will be praying for you to tolerate the treatments and keep a good attitude, or a stiff upper lip.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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