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Joined: Nov 2012
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Joined: Nov 2012
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My husband just finished treatment (yesterday, in fact) and all of a sudden Mugard makes him throw up every time he uses it. He's got mucositis and so far the Mugard has been his favorite wash. He's continuing with the Caphasol, baking soda, and CML, but those don't address the ropey mucous. Any ideas about something to take the place of the Mugard?


Husband diagnosed 10/11/12 with Stage III oral tongue SCC, T3N1M0 (HPV negative). 35 years old, non-smoker, non-drinker.
Hemiglossectomy and left selective neck dissection (levels 2, 3, and 4) on 11/01/12.
Chemo (Cisplatin x 3) finished 1/23/13.
Radiation finished 1/28/13.
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"OCF Canuck"
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"OCF Canuck"
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Tell him to try rinsing with semi flattened club soda. The effervescence of the club soda will break up the mucous, and help heal like the baking soda rinse. And I'll add what I always add - waterpik. Get one if you can he can use it on the lowest setting with the tongue cleaner head (blue one that looks like a spoon)it shoots water around the persons mouth to clean up all the gunk and if you add a little non alcoholic mouthwash it freshens too. tis awesome. So glad he finished. Hope he is doing ok.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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To add what Cheyrld mentioned, papaya or pineapple juice rinse. You can add meat tenderizer to it or water, if it doesn't burn, since both have enzymes in it to cut the mucus. Sleep with a humidifier, on an incline. Some use OTC Mucinex or Robotussm to help the mucus. I didn't have much luck with the waterpik, and was flying all around the pace like a loose fire hose lol. but many use it successfully.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Some patients will rent a portable suction machine to help with the mucous. It will take a prescription from your physician to get one from a medical supply company. The machine can be a huge help in getting rid of the thick mucous. They can also do this right in the doctors office.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2012
Posts: 145
"OCF Down Under"
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Posts: 145
Congrats on finishing treatment.

The first few weeks post-tx are the toughest, but I am sure that you will 'turn the corner' very soon!

Soda water, ginger ale or drinks with fizz in it didn't work for Jen but the Waterpik that Cheryl mentions is amazing and is highly recommended.


6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0)
3/9/12: Induced birth @ 36 weeks - Baby Hunter!
11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec.
24/10/12: 33xRad + 7xChemo
7/12/12: Tx complete
21/3/13 & 21/6/13: NED
24/7/13: SCC in Lungs - OP: Lobectomy (VATS)
29/1/14 passed away

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