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Joined: Jan 2013
Posts: 11
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Joined: Jan 2013
Posts: 11
Hi,

My fiance had a total laryngectomee in June, 2012. His first scan post-op came up positive in his hypo pharynx. He is currently receiving carbo/Erbitux and 5-FU. He was disconnected last Tuesday. He is having trouble breathing. He says it feels like there is a ton of mucous blocking his airflow. Does anyone have any suggestions as his Doctor's are not communicative(he will not find a new medical team. UGH!!) and so I thought I would see if anyone has any suggestions to relieve his symptoms/side effects. Thanks!

Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Hello again,
My husband is also a laryngectomee.
Does your husband use a nebulizer at all? This aerosolizes saline into the breathing tubes/lungs with the prime aim of adding water to the mucous to enable it to be coughed up easily. As it is winter in your part of the world do you also run a humidifier in your home ? The heated air in a warm home is very dry and a laryngectomee will need to add moisture to their environment too.
Other things you can do are run the shower and get him to breathe in the steamed up room for about 30 mins or so.
Fill a bowl with boiling water and get him to lean over it and breathe in the steam. This works better if you put a towel over his head and neck.
Also having a shower and getting a small amount of water in the stoma also produces a strong forceful cough.
Some Laryngectomees use a medicine called guanefisine( spelling) to help dry up the secretions if they are producing too much. Talk to a pharmacist about this one.
Have you looked at www.webwhispers.com
This is a very helpful and informative site just for the laryngectomee .
Hope some of this is helpful,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!

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