#16095 08-11-2004 10:59 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | God Bless You Bobby, so happy there are no other HOT SPOTS. I will be thinking of you and praying for you and your wife and daughters....Take Care, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#16096 08-11-2004 01:06 PM | Joined: Aug 2004 Posts: 3 Member | | Member
Joined: Aug 2004 Posts: 3 | Hi Bobby, Eric (AzTarHeel) here (accidently posting under my wife's alias)... Your attitude is awesome... Even though I'm a Tar Heel, who went to school in Chapel Hill, I wish you nothing but the best over the coming weeks...
I'm halfway through my second bout of radiation (18th treatment today), and I can report this time is much smoother than the first time... Of course, I'm only getting rad to the neck and nowhere in the mouth or esophogus... The chemo is no walk in the park, but it's bearable aside from a couple days of feeling queasy after the infusion... You can do it!!
Wife of AZTarHeel, SCC of tongue T2,N1,M0 - 30 IMRT 12/'03 - 1/'04; May 2004 radical neck dissection 1 cancerous lymph node found; cisplatin 1/every 3wks; 33-36 IMRT treatments to lower neck which wasn't previosuly radiated.
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#16097 08-11-2004 02:52 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Best of luck Bobby, this is my 3rd time trying to beat the beast as you put it. I wish you nothing but the best so you can be here to enjoy your loving wife and beautiful daughters,,, we are pulling for you..Always Miss Vicki | | |
#16098 08-11-2004 07:05 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Bobby,
I have children the same ages as yours. Let them be your strength when yours starts to hide, they're stronger then you realize.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#16099 08-11-2004 11:23 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hey Bobby,
WOW! What an attitude! If positive attitude alone could beat this beast you'd do that hands down! I admire you for your spirit and spunk. Will keep you in my thoughts and prayers as you go forward with treatments.
Hugs, Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#16100 08-12-2004 01:23 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2002 Posts: 80 Likes: 1 | Bobby
I'm NC too, just down east a little. Welcome and great attitude, love to hear that. I believe in the prayer system. I also was stage IV tongue and mets in lymph nodes. I took 37 rad. treatments and told I couldn't have anymore if the
beast returned. What's the difference? I will add
you and your family to my church prayer list and ask others that I know to add you also. God bless and keep that attitude. I think your wife and kids are very lucky to have you.
JOAN
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#16101 08-12-2004 09:49 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bobby,
I am glad to hear of your good PET scan results. I will be praying for God's guidance and wisdom for your medical team and for the days ahead to go quickly and succesfully.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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