| Joined: Jan 2013 Posts: 65 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jan 2013 Posts: 65 | My husband was diagnosed with stage 4 tonsil cancer (squamous cell) in 2001. It had metastasized to at least four lymph nodes in his neck on the same side. We realized something was wrong when a lump the size of any egg appeared suddenly below his ear. The first doctor told us he probably wouldn't make it. Our four grown sons found dad a new doctor. The new doctor was full of optimism. So in 2001 Charles underwent surgery and six weeks of radiation. No chemo.
In 2011 Charles noticed a lump in his tongue. A biopsy came back negative. But, the biopsy wound never healed and has become very painful plus the wound has developed hard edges. The doctor was a bit alarmed and has scheduled another biopsy. This time the doctor will make a clean wound and stitch it up.
My BIG concern is will a radiated tongue ever be able to heal? I have searched and searched and cannot find an answer.
Sheryl | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Congratulations on 12 years! To my understanding, wound healing can be more difficult or delayed.in a radiated area due to reduced blood flow, reduced oxygen, necrosis and fibrosis. Other factors may compound matters like poor diet, lack of protein, smoking, alcohol, diabetes, and other lowered immune system disorders. Some need to see a wound care specialist, and may need HBOT, Hyberbaric Oxygen Therapy. I had 30 HBO for a tooth infection that was not healing properly, 20 before, and 10 post extraction. Post neck dissection, stitches are left in longer for healing, if you had prior radiation.
Good luck with everything, and hope the tongue finally heals properly.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yes it should heal with tlc - it may take longer but it should heal. Tell him to keep it as clear as possible and avoid irritating foods. There also HBO for wound healing as a as resort! Congrats on the survorship!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2013 Posts: 65 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jan 2013 Posts: 65 | Thank you PaulB and Cheryld. During Charles' diagnosis, surgery, and radiation it was a chat board like this that kept me sane. I am ever grateful.
Wife/caregiver to Charles ENT diagosed SCC Rt Tonsil Stage IV, MET 6 lymph nodes in neck 1/2001 Tonsillectomy, RND and six weeks RADS 2/2001 ENT diagnosis from CT scan, SCC in Rt tongue 2/13 25% of tongue removed 2/13 (clear margins) SCC BOT with mets to 2 level 2 nodes and Lt. Delphian node 8/2014 Surgical biopsy shows cancer in larynx 9/2014 Laryngectomy, resection & rebuilt tongue w/ pectoral muscle, selective neck dissection 11/2014 Recurrences '16 HPV Neg No EGFR Mutations Detected
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