| | Joined: Dec 2012 Posts: 38 "OCF Down Under" Contributing Member (25+ posts) | OP  "OCF Down Under" Contributing Member (25+ posts)
Joined: Dec 2012 Posts: 38 | Well I had my biopsy today and before I went under, my Ent said don't even ask him if it looks suspicious as he said he could not tell me with any certainty. He will tell me how the actual procedure went. Humph! I did however plead with him to see me this Friday for results instead of next Tuesday as that I feel is too long a wait!! So I finished with the procedure and was in recovery and he came up to me and said he actually couldn't find anything unusual.... So he took a bigger piece of the middle of the thickening on my tongue but said it wasn't anything unusual so the results may come back ok buuuuuuuut I will discuss that with u on Friday. Lol so what does this mean??? Am I allowed to be excited that it looks ok or not? I never know how to read him but wondering if he would be worried about something else now? Oh dear this is so confusing! X
Female 34. Non smoker, casual drinker
Dx July 12 stage 1 scc to left tonsil n0 m0. Hpv + 16 . 7 weeks daily rads finished sept 2012. 3 mth scan - low activity in primary spot hopefly t's just inflam. 2013 Abnormal tissue next base of tongue, came back negative. 5 month scan all clear!!!!! Yayy
| | | | | Joined: Sep 2012 Posts: 145 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2012 Posts: 145 | Why confuse yourself when you will get accurate results on Friday?
Try and keep your mind occupied and not let it run away as it will only cause more stress & grief!
6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0)
3/9/12: Induced birth @ 36 weeks - Baby Hunter!
11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec.
24/10/12: 33xRad + 7xChemo
7/12/12: Tx complete
21/3/13 & 21/6/13: NED
24/7/13: SCC in Lungs - OP: Lobectomy (VATS)
29/1/14 passed away
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | The surgical biopsies need to have a full pathology before a final result is in, and sometimes are sent out, which takes a few days to get back. Your surgeon did not see anything unusual, which may have been from observation or frozen section done during surgery, but usually reserves opinion until final report is in.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I would be cautiously optimistic. He took what he could but didn't see anything unusual. Based on his experience this is a good thing. The final biopsy results will show a definitive result but this sounds good. Best of luck I truly hope he's right. hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2012 Posts: 38 "OCF Down Under" Contributing Member (25+ posts) | | OP "OCF Down Under" Contributing Member (25+ posts)
Joined: Dec 2012 Posts: 38 | Thanks all fr being so patient with me!! Lol I annoy myself sometimes haha!
I was in my delirious post op state and very confused as it was almost as if he was alluding to well I couldn't see anything there so chances are results will be normal but maybe something else is going on where he can't see lol I don't even know if that's possible. And it's not what he said so I'm not even going to allow that thought process to continue down that path! Ill just wait and see, at the end of the day it's all we can do. Its only a couple of days so I'm just going to keep busy. It's still the summer school holidays here in Aus and I have today off work to recover from yesterday so I'm looking forward to spending the day with my three little munchkins.
Female 34. Non smoker, casual drinker
Dx July 12 stage 1 scc to left tonsil n0 m0. Hpv + 16 . 7 weeks daily rads finished sept 2012. 3 mth scan - low activity in primary spot hopefly t's just inflam. 2013 Abnormal tissue next base of tongue, came back negative. 5 month scan all clear!!!!! Yayy
| | | | | Joined: Jun 2011 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2011 Posts: 54 | I will be thinking of you and sending calm vibes your way. I know it is hard.
Age 44. Diagnosed at 34 (2006) with T1N0 SCC tongue on right side. Neck dissed & 6 weeks Radiation. 30% tongue removed. Never smoked;
2nd recurrence 1/2013 on left side. Surgery to remove 2/2013 forearm flap/neck dissec T1N0; brachytherapy 4/2013;
3rd recurrence 11/2015 mandibulectomy for jaw bone cancer Stage IV/no lymph node involvement
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Saying prayers and wishing you good healing vibes and an all clear.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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