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AnaD Offline OP
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Good morning folks, We've just had someone reach out to us, looking for ideas on how to get a patient to and from treatment in northern Illinois. Wife's work is giving her loads of grief for taking any time off. Does anyone know of an organization that helps cancer patients get to and from daily treatment? Thanks


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
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Look into your local chapter of the American Cancer Society...many have volunteers that do this very thing on a volunteer basis.

Good luck!


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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Also check with your treatment facility..they may have some good leads since they probably see people everyday with the same need.

I know the nurses in the chemo infusion unit helped us with a couple of things that were not actually in the scope of their jobs.


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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AnaD Offline OP
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Thank you Deb, will pass this on. And God love oncology nurses, they are truly special!!!


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
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Also try local houses of worship - some may be willing to help even if the patient is not affiliated.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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"OCF Canuck"
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I was going to say the same thing... cancer society, or hospital. If it's distant travel then most ccc's have hope lodges to stay at during the week.

best of luck.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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I stayed at Hope Lodge, as Cheyrld mentioned is an idea. It's impressive here in NYC, and free. You have to be one hour away travel time to qualify, not overseas lol, so you can be local, and the traffic in NYC, makes almost everyone qualify. In addition to the above, if your area has public transportation, they most likely are required to have paratransit for those disabled. You can get temporary designation of disability during treatment, and receive door to door service to treatments, and in NYC can go anywhere to food shop, etc for the same price as the normal fare that is $2.25

Some insurances may pay for Ambulance or ambulette service to and from treatments. Some medicare advantage plans do, medicare, Medicaid, and probably others.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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[quote=AnaD]Good morning folks, We've just had someone reach out to us, looking for ideas on how to get a patient to and from treatment in northern Illinois. Wife's work is giving her loads of grief for taking any time off. Does anyone know of an organization that helps cancer patients get to and from daily treatment? Thanks [/quote]

Does the patient not have any neighbors, friends or family? I had someone lined up every day of the week to take John to his radiation treatments. I carry the insurance for us as he owns his own business and I couldn't take time off from work to drive him back and forth every day. Radiation treatments don't take that long. People are more willing to help out than you would think. I also applied for "Family Medical Leave" to cover the time I missed. Legally you can't be disciplined or terminated when you are the "caregiver" and have "Family Medical Leave".


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2

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