| Joined: May 2012 Posts: 162 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2012 Posts: 162 Likes: 1 | Good morning folks, We've just had someone reach out to us, looking for ideas on how to get a patient to and from treatment in northern Illinois. Wife's work is giving her loads of grief for taking any time off. Does anyone know of an organization that helps cancer patients get to and from daily treatment? Thanks
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Look into your local chapter of the American Cancer Society...many have volunteers that do this very thing on a volunteer basis.
Good luck!
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Also check with your treatment facility..they may have some good leads since they probably see people everyday with the same need.
I know the nurses in the chemo infusion unit helped us with a couple of things that were not actually in the scope of their jobs.
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: May 2012 Posts: 162 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2012 Posts: 162 Likes: 1 | Thank you Deb, will pass this on. And God love oncology nurses, they are truly special!!!
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Also try local houses of worship - some may be willing to help even if the patient is not affiliated.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I was going to say the same thing... cancer society, or hospital. If it's distant travel then most ccc's have hope lodges to stay at during the week.
best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I stayed at Hope Lodge, as Cheyrld mentioned is an idea. It's impressive here in NYC, and free. You have to be one hour away travel time to qualify, not overseas lol, so you can be local, and the traffic in NYC, makes almost everyone qualify. In addition to the above, if your area has public transportation, they most likely are required to have paratransit for those disabled. You can get temporary designation of disability during treatment, and receive door to door service to treatments, and in NYC can go anywhere to food shop, etc for the same price as the normal fare that is $2.25
Some insurances may pay for Ambulance or ambulette service to and from treatments. Some medicare advantage plans do, medicare, Medicaid, and probably others.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | [quote=AnaD]Good morning folks, We've just had someone reach out to us, looking for ideas on how to get a patient to and from treatment in northern Illinois. Wife's work is giving her loads of grief for taking any time off. Does anyone know of an organization that helps cancer patients get to and from daily treatment? Thanks [/quote]
Does the patient not have any neighbors, friends or family? I had someone lined up every day of the week to take John to his radiation treatments. I carry the insurance for us as he owns his own business and I couldn't take time off from work to drive him back and forth every day. Radiation treatments don't take that long. People are more willing to help out than you would think. I also applied for "Family Medical Leave" to cover the time I missed. Legally you can't be disciplined or terminated when you are the "caregiver" and have "Family Medical Leave".
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
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