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#159769 01-06-2013 10:40 AM
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So my teeth are falling apart. I finally got in to see a V.A. dentist as I have no dental ins. and she referred me to an orthodontist who I see on the 25th. Dentist says she expects that they will want to pull them and give me full dentures but now I'm finding info that pulling the teeth can lead to necrosis. That's pretty scary but I don't know if my teeth can be saved. The gift that keeps on giving indeed.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #159770 01-06-2013 10:59 AM
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That's true. If you had radiaion to the H&N, and need any teeth extractions, you need to have Hyberbaric chamber treatments (HBO) before the extraction, 20 dives, and 10 dives after the extraction to help prevent osteonecrosis (ONJ). Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Deejer47 #159774 01-06-2013 12:30 PM
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You should also have the work done by a dental oncologist - smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Deejer47 #159776 01-06-2013 12:39 PM
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Sounds like good advice. I have to go to san Francisco (170 miles) to see orthodontist. Working on a list of questions. Sounds like I may be spending some time in S.F., which is ok as the V.A. will providee a place to sleep and I haven't spent any time in the City in years.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #159778 01-06-2013 12:50 PM
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Keep the faith, David. Thinking of you.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
David2 #159781 01-06-2013 01:50 PM
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Kris is in the same boat as you. We are still waiting to hear what the plan is for HBO and dental removal. I'm thinking a general anaesthetic will be needed too.
I will follow your posts and updates keenly.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Deejer47 #160890 01-26-2013 01:08 PM
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Well, the orthodontist in San Francisco confirmed my fears. I need to have everything pulled and full dentures. The good news is, I can have HBO here in Chico. I was afraid I might have to stay in S.F. for that. 20 tx before extractions and 10 after. I do have to go to S.F. for the surgery. Can anyone tell me the side effects, if any, from HBO? Oh, and he said that necrosis is still a possibility but that they have had very good results. More scary stuff to deal with. Thank you so little, cancer.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #160891 01-26-2013 01:34 PM
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I have early stage cataracts, still correctable with lenses. However, my opthalmologist believes the HBO I had did advance growth of the cataracts. Isn't it always something? My best to you with your dental work.


Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
Deejer47 #160893 01-26-2013 02:34 PM
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Most don't have a problem, unless claustrophobic. The first day was the most difficult, but after that no problems, and just watched movies, so the time went by..2hrs. I did did hear of people with cataracts, near sightedness may worsen in some cases, and actually may improve far sightedness temporarily. I guess there are some underlying issues to be considered by the doctor there, and you are closely monitored while in the tube. I needed my glucose level, bp, checked before each dive by the nurse. If my blood sugar level was low, even 130, they made me wait, and drink juice, eat cookies since the HBO may lower it, and usully did when they rechecked afterwards. A few times I had to drink something after to get my sugar up before letting me leave. Some get tired, I did, or have ear problems if having a sinus problem or other esr issues, which may cancel a treatment, but your ears should equalize on thier own or by dry swallowing. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Deejer47 #160898 01-26-2013 03:31 PM
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Posts: 756
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I had some problems initially with my ears, but when I learned the proper technique to "dry swallow" both at the beginning of the dive and at the end, I was fine. My doctor also recommended I use a nasal spray before each dive. I did have some minor vision changes afterwards, but that cleared up in a few weeks (this is common side effect).

It can be a long 2 hours so I brought a DVD with me each time to help with the boredom. You cannot take anything in the HBO chamber with you but fortunately the facility I went to had a flat panel TV mounted on each chamber so that helped with the boredom.

I'm glad you are able to have the treatment close to home. Good luck!



Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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