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Joined: May 2012
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AnaD Offline OP
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Thank you guys for the warm wishes and for celebrating with us...this entire experience has left us over the moon happy and exhausted, ready for the best Christmas ever. Charm, talk to me some about the MRI, would they be able to tell sarcoidosis from cancer on an MRI?


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
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ana

Much as I would like to say YES, yet another reason to prefer an MRI, the truth remains that there is no test or scan, (not petscan, not MRI, not CT, not ultrasound, etc) that can definitively distinguish between some conditions and cancer. Only a biopsy can do that.

However, Petscans seem to mistake sarcodosis for cancer at an extremely high rate. The old false positive that is the hallmark of Petscans.
See this report Sarcoidosis - petscan

According to Dr. Google, MRIs are the preferred method for tracking sarcoidosis. According to my CCC and ENT, MRIs are the preferred method to check for mets in base of tongue due to the almost 50% false positive rates of petscans for bot cancers.

The majority of doctors and researchers who push Petscans over MRIs in my opinion do not understand just how devastating and worrying getting the false positives are. I understand why they like them, it's "nuclear medicine" and the petscans are all in color and gorgeous while the MRIs are black and white.
Except that an MRI will not show inflammation as cancer, a MRI will not show normal tissue recovering faster than normal and taking in sugar as cancer, etc.

Talk to your doctors about getting MRIs for your husband, it cannot hurt.

Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Great News!


large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
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