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| | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) |  "OCF Down Under" Gold Member (200+ posts)
Joined: Oct 2011 Posts: 225 | My brother was told his SUV pre-treatment was 15.7!!
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Katie, I too had both sides radiated from mandible to clavicle even though the cancerous nodes (2) were only on the left side.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Oct 2012 Posts: 33 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Oct 2012 Posts: 33 | I met with the medical oncologist yesterday morning and I was thoroughly impressed. He took his time with us and had a terrific bedside manner. He also made a phone call to a colleague at MSK in NYC to get an opinion. We decided to go ahead with radiation and chemo. I'll be getting Cisplatin once a week for the duration of radiation.
I have an appointment on Monday at MSK in Basking Ridge with the head of radiation oncology. The head of head and neck cancer at MSK in NYC reviewed my case, but since the radiation oncologist there didn't have an immediate opening, they sent me to Basking Ridge. I am completely elated that I am seeing someone so soon.
I wonder how her opinion will differ from that of my current RO. I'm anxious for Monday to come.
10/2/12 Surgery Dx Stage II SCC RLT
11/12/12 Further tongue resec and SND. 3 of 22 lymph + SCC Stage IVa
11/22/12 Hospitalized for infection incision at neck
12/5/13 PET scan tumor at BOT
12/26/12-2/27/13 RT and Cisplatin
4/1/13-5/17/13 3 rounds of Cisplatin, Taxotere and 5-FU
7/19/13 Pet Scan possible recurrence
8/23/13 2nd op at MSKCC, CT Scan
8/31/13 MRI. Both show sizeable mass
9/11/13 CT-guided needle BX + SCC
10/1/13 Erbitux, Cisplatin and Taxotere
2/14/14 Passed away
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