#15877 07-02-2004 10:07 AM | Joined: Jul 2004 Posts: 16 Member | OP  Member
Joined: Jul 2004 Posts: 16 | hello every body iam a 30 yr old white male i had oral ca i yr ago i had a lesion on my tongue removed and had radiation therapy this year i had a recurrance and had a lesion removed at the base of my tongue iam recovering at home now and going threw speech therapy luckily i did not need radiation therapy this time but my speech is severly impaired i had my surgeries at the james cancer ctr in columbus ohio my dr is dr schuller it is a great institution
well thats all for now thanks
30yr WM ,2003 dx oral squamous cell ca of tongue had lesion removed on lt side of tongue and 9 nodes 1 node pos. had 36 treat. rad therapy 2004 had lesion growing on lt base of tongue had partial glossectomy with skin flap taken from left arm
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#15878 07-02-2004 10:38 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cowie,
Welcome to the community! I am sorry you have had to deal with a recurrance. Good to meet you and glad to hear you are recovering.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#15879 07-02-2004 11:39 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Welcome Cowie Sorry that you have had to deal with cancer at such a young age and also a recurrence as well as speech impairment. There are some extraordinary people in this forum who will support you on your journey. I look forward to reading that your speech is improving. From Helen, with love 
RHTonsil SCC Stage IV tx completed May 03
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#15880 07-02-2004 01:30 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Cowie,
Welcome to our family! It's not easy but we definitely are supportive here! My husband has also been thru the tongue cancer, also with a recurrance to the neck. I will keep you in my prayers.
Take care,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#15881 07-02-2004 01:35 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Welcome Cowie,
Welcome to the club no one wants to join!! Sorry to hear of your reoccurance. Hoping your recovery is complete. Welcome again!!
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#15882 07-02-2004 02:46 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hi Cowie,
Glad you found us and this board but sorry about the circumstances you are facing as the reason for coming here. I had a total glossectomy in July 2003 and with the help of my speech therapist and my mouth prothesis, my speech has really come a long way. Talking which use to come so naturally before now takes a lot of effort in forming words (especially for those sounds requiring a tongue) but I've been able to compensate for those sounds and find that people can understand me about 90-95% of the time. So hang in there and try to find a good speech therapist. You'll amaze yourself that with a good therapist and some hard work, your speech will improve significantly. Keep us posted on how you're doing.
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#15883 07-03-2004 05:00 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Cowie,
Sorry you have had to join us.. but welcome.. I'm sure if you read through some of the previous post you'll find much to help you. I'm sorry you are having so many problems with your speech at the moment.. all I can say is stick with it.. it should get better as time goes on..
Sunshine... love and Hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#15884 07-03-2004 06:57 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Greetings and welcome to the forum from a fellow 30-something... I'm getting ready to start a second round of radiation myself for a recurrence in one of my lymph nodes... pretty crazy to be dealing with all this stuff at our age, eh?
Blessings to you and may you give this disease a total KO...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#15885 07-04-2004 03:59 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Cowie, Welcome. Sorry you have to be a part of this, but the good news is that this site is here to help you through some of the rough times. I had tonsil cancer so I can't relate or help too much with tongue issues, but welcome to the club.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#15886 07-05-2004 03:59 PM | Joined: Jul 2004 Posts: 16 Member | | OP Member
Joined: Jul 2004 Posts: 16 | ha guys thanks for all the good blessings i cant thank you enough i have my 3rd week of speech therapy tommarrow tue wed fri for an hour at a time how long did everybody else go also any info on those prothesis would be helpful iam a cat scan tech at a local hospital so if i can answer any questions or be any help let me know also another question "eating" how good is it exspected to get also i have alot of saliva or druel when i talk will that gey better with time?any info on that would be appreciated also iam heart set on doing the best of my ability with eating speaking etc i realize its not all going to be as good as it was but i want to do the best i can and this website has helped me out alot you guys (men and woman of course) have been great and i thank you for your time and info feel free to email me any time [email protected]
30yr WM ,2003 dx oral squamous cell ca of tongue had lesion removed on lt side of tongue and 9 nodes 1 node pos. had 36 treat. rad therapy 2004 had lesion growing on lt base of tongue had partial glossectomy with skin flap taken from left arm
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