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"OCF Canuck"
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This morning I had a bit of an earache on the right side, but didn't think too much of it. Tonight, there is an egg sized swelling in front of/below my right ear - going down my jaw and to the top of my neck.

I did not notice this before, but to be truthful I have no idea when it appeared. I am past the point of detailed checks of mouth and neck every day - or I thought I was. WHAT is going on? I do not have a cold, sniffles or any virus, and have had my flu shot.

I had some minor surgery on my right wrist on Tuesday, but I do not see how this could be related to this lump. The lump/bulge feels firm. I have been taking T3's for pain in my wrist, but Lord knows I have taken many of those and have never had a reaction.,

How worried should I be? Any thoughts? Cancel the first question - I'm already worried - just trying to decide whether to flat out panic or not. I wish these things got easier. Truth is for me, as much as I like to say I am more accepting of whatever happens, I remain a frightened marshmallow.

Donna

Last edited by Pandora99; 12-06-2012 09:02 PM.

Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Donna,

I have no idea what it could be - maybe some kind of infection? Are you running a fever? If it was me, I would give my doctor a call first thing in the morning. Let us know!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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"OCF Kiwi Down Under"
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Oh Donna, it never gets easier does it. I get into an emotional spin whenever something odd happens health wise with Kris.
All I can suggest is what you already know, go and get it checked out by your doc. The lump seems to have come up awfully quickly to be a cancerous node. Together with the ear pain it's probably an infective reaction. Get it checked.
Thinking of you, Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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Im so sorry you are worried and have something wrong, Donna! I agree with the above, this came out of nowhere and sounds awfully large to be cancer so its probably a sign of infection. I would still call the doc and see if you can get in there today or early next week. I know how you worry and wont relax until you get checked. I dont think it sounds serious but be safe and get checked.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Is it painful? A few weeks ago I had a large painful lump pop up right below my jaw line, which also caused me to panic. However, it went down after I rubbed it for a while. It turned out to be a stone in my salivary duct, and the buildup of the saliva caused my salivary gland to swell. Maybe there is a chance that's what this could be?


Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
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"OCF Canuck"
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No, the lump is not painful. Whenever I get swellings in my neck I get "prickly" skin stretching sensations and that, & the bit of ear pain alerted me. I have now e mailed my oncologist surgeon's nurse this morning and I see my GP on Weds so we'll see what happens. Words cannot describe how frustrated I feel at not knowing WHEN it is appropriate to contact a professional and when I should just back off and relax. My doctors are awesome and I don't want to waste their valuable time, and at the same time I don't want to ignore something that should be addressed.

Thanks for answers. More opinions/experiences welcome.

Donna

Last edited by Pandora99; 12-07-2012 08:43 AM.

Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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You're not wasting the doctors time. If you can't see your doctor or clinic now, maybe go to the ER. I don't know if its getting better or worse, but you don't want your breathing or swallowing effected, and suggest to see medical care. It could be anything, nothing major, even a reaction to the T3, the anesthesia if you had it, or late occurring effect from treatment, lymphdemia or something else.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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It could be an ear infection. One morning during Christmas time last year I woke with a slight ear ache, next thing my cheek and eye on the same side was swollen with a large red patch. The swelling spread.

A couple of months back it happened again but swelling appeared below and around my ear that time. I was concerned it could spread and create havoc with my throat and airways. Both times my Doctor prescribed Sofradex ear drops. Swelling and ear ache was gone within a couple of days.

Karen

Last edited by Karen Rose; 12-07-2012 05:08 PM. Reason: typo.

46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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I agree that your doctors don't mind being bothered when you are worried. I tend to panic now with every lump. It could be a tooth infection to. If the swelling moves up I would go to the ER right away. I hope it is something that's a quick fix with antibiotics. Good wishes and all the comments lately from everyone here have helped me stay a bit focused at the moment.


10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
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"OCF Canuck"
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Hi - sorry you have to go through this. It definitely sounds like an infection, and maybe because youve been rewired (as in - missing some nodes) theres a build up of fluid there. Hope it's nothing - but glad you're having it checked. Hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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