| Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Glad to hear all went as expected . Now it's just the road to recovery. Don't forget to care for yourself too B�tte . This is an exhausting experience for the caregiver too. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | 7:40 pm - Reg is now getting nutrition through the NG in his nose. Meds are minnimal, however still trying to find good pain management. drains are working full throttle now so not so much blood pooling under his chin. Tonight I sleep. I think he will be okay until the morning. They are getting him up first thing. Night all.
Last edited by Bette; 12-06-2012 08:52 PM.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Bette, this all sounds great. Do prepare yourself for his face to be very swollen for quite some weeks. Listening to the Doppler blood flow is reassuring isn't it. This is extensive surgery and sometimes it is 2 steps forward and 1 step backwards. Hopefully you have had a good nights sleep and are ready to encourage and motivate Reggie as he gets up for the first time. All very positive. Thinking of you both, Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Oct 2011 Posts: 225 | Bette, I hope as I write this you and Reg are in the middle of a long and very restful sleep. Best wishes, Linda
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good. | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | So glad to hear that Reggie is doing so well! Hoping that you have been able to get some sleep and care for yourself, too. Best wishes for problem-free recovery.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | Friday 12/07/12---REggie got up and walked today. Not far, but out of his room to the hall and back. Sat up in the chair for about 2 hours. His thigh where they took the flap is very painful and is bleeding alot through the dressing. The doc says it's because he had to cut alittle higher, closer to the hip. Reg is very very swollen. Especially the native part of the tongue. You can hardly see his stoma so he is wearing a lary tube to keep the stoma from fallin over on itself. His color is much better today and they finally were able to get the pain under control with fentynol instead of dilaudid. Amen! His vitals are great. They have been giving him some blood because his hemocrit is low. 2 untis last night and 2 this morning.The doppler sounds are strong in the throat. Faint but ledgible in the tongue. Eleccytrolytes are okay now. He was throwing PVC's, but that is under control after mad and potasium. As long as the surgeons and the team are pleased so am I. Taking it hour by hour.It's a beautiful day in the city. Sun is shining, no wind. Have the window open in the hospital room and now in the hotel room. Will update later. :-))
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Sounds like Reggie is making great progress! Good for him! And good for you, too - you are both quite a team!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Oct 2011 Posts: 225 | Bette, it sounds like Reg is in a lot of discomfort, but that's great he's having a spell out of his room. Ask the doctors about avoiding constipation whilst on the pain meds. Best wishes, Linda
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good. | | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | Reg is doing well enough that he will be moved from ICU. So probably the foley will come out and the A line. Good cause I know that A line hurts. Tolerating the NG tube and the nutrition well. No blood transfusion since yesterday morning. Hope today goes well.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Great progress. Watch for retention once the foley comes out. You're doing a fantastic caregiving job. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
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