| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | At this time the ap is still in the works. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | well, here it is 5:30 a.m. on Wednesday and all the sleeping pills in the world haven't worked. So I just decided to get up and pace the floor for awhile. We will be leaving for the hospital in about an hour. It's a rainy day in the city, but at least it's not windy. I ask everyone today to please say a prayer for Reggie. Thanks to you all.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Bette, I will say prayers for both you and Reggie. Know that he will be in safe hands today. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | 2:50 p.m. Surgery started at 10:37 am. Everything is going okay. It's just about time for another update from the O.R. IT's nice that they call about every hour to let me know he's okay.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Glad to hear things are going ok, Bette. It really is nice that that you get hourly updates on how Reggie is doing. Hope you are doing ok, too. Do you have someone with you to share the waiting?
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive been checking this thread off and on all day for another update. Hoping everything went smoothly and your husband is resting comfortably. Best wishes for a pain free and speedy recovery. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2012 Posts: 7 Member | Member Joined: Dec 2012 Posts: 7 | I, too, have been continuously checking for another update. My husband is scheduled for the exact same surgery on the 17th of December, so I am anxious to see how things went. You guys will continue to be in my thoughts and prayers.
Last edited by Chuckles0504; 12-06-2012 05:31 AM.
1/16/12 - diagnosed with Stage IV BOT cancer with 2 nodes involved. HPV+ 2/12 - 4/12 - 40 rads and 8 chemo 7/12 - PET clean 10/12 - cancer back at base of tongue 12/17/12 - partial glossectomy, neck dissection
| | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | It is 1:30 pmm. pacific time. Just got back to the hotel for the first time since the surgery began. What a day and night...So the surgery started late (of course) had to make us wait just a little bit longer. 10:37 a.m. First surgeon who did the excising and disecting finished at 3:00. I talked to him around 4 and he told me that 75% of the tongue had to be taken, mostly on the right side all the way to the tip. The tip is gone. Some of the left side was also removed. He also removed a portion of the pharynx and a portion of the right soft palate. Dr. Wang cut to clear margins. They also took 4 nodes but won't know that status until next week from path. Dr. Knott, the reconstructive surgeon this morning was very pleased with the outcome. The doppler sounds from the transplanted vessels and artery are strong so that means blood is flowing ..YEAH! Reg looks like a mack truck smacked him in the face and neck a couple of times. I went to my knees when I first saw him last night in ICU. OMG what has happened... But today is a new day and some of the swelling has subsided although it will return in the next 3 days. He is awake and off the ventilator, breathing on his own. He is responding quite well with the communication board they provide and also the white board that I took to the hospital. He is extremely swollen and black and blue. There for awhile the doc thought they might have to put in a bigger drain since he wasn't draining as well as he should have been, however, since he is off the propophal, his drains are draining better because he is more active in the bed. Also his BP is much better since weaning from the propophal. He is mouthing words even with a tongue 4 times it's normal size.
We have a long way to go but already have been through half the journey. I am positive that Reg is on the road to being cancer free again.
Oh also, there could more rad and chemo in the near future. I think it would be wise. Opinions please.....
Last edited by Bette; 12-06-2012 03:11 PM.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | I also want everyone to know that I appreciate the concern. We will get through this. And so will all of you. :-)
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Hi, Bette glad that the surgery is done and the doctors are happy! Take care of yourself as well, and be wishes to both of you. Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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