| Joined: Oct 2012 Posts: 17 Member | OP Member Joined: Oct 2012 Posts: 17 | We'll see if I do this correctly and in the right spot. This week I finished my first4 radiation treatments of 2.7 rapid arc IMRT to both sides of the neck, including the lower jaw, down to the clavicle. I also had my first of 3 cisplatin treatments on Thursday. No nausea because of the meds, I assume. Zofran and Prochlorperazine. One hydration therapy yesterday that has me blown up like a balloon from the sodium. My neck is starting to get very red even with the aloe, miaderm and aquaphor--I switch off and on, but always use the aloe first as it is the most soothing. I woke up during the night with my mouth and throat very dry so I guess it's time to start the cool mist humidifier. I was hoping and praying the swollen and sore throat would at least wait until next week, but no luck. From what I've read from y'all, everything is pretty normal. Any suggestions are welcome. Thank you
Barbara/Babs/BJ Oct.8,2012 SCC BOT WITH LEFT NECK LYMPHADENOPATHY Mod rad neck dis,left, levels I through IV partial gloss microdirect laryngoscopy with biopsy bronchoscopy lingual tonsillectomy HPV rad-rapid arc imrt x35 cisplatin x3
| | | | Joined: Nov 2012 Posts: 7 "OCF across the pond" Member | "OCF across the pond" Member Joined: Nov 2012 Posts: 7 | Hi Barbara, My partner is at similar stage - just completed 11 of 30 rads. He has sore throat and finds rinsing/gargling and then swallowing a thick liquid paracetamol mix helps numb things a bit before eating. Not a nice journey to be on - but with the support on this forum - you are sure to get through. All the best Kitty
Partner (never smoker, light drinker age 56) lymph node noticed 7/20/12 DX SSC tonsil 8/8/12, T2 N2a M0 HPV 16 +, tonsillectomy 8/15/12 neck dissection 9/25/12 IMRT (30) started 11/2/12 First Cisplatin 11/5/12, Second 11/20/12. Finished 12/13/12. Follow ups - all clear
| | | | Joined: Nov 2012 Posts: 7 Member | Member Joined: Nov 2012 Posts: 7 | Hi Barbara .... Sounds normal is correct. I did not see where you have silver sulfadiazine (SSD)? It's by Dr. Reddy's. This cream was great for me! It was more soothing for me than any of the other items you mentioned (but each person is different). If you do not have any on hand you many want to ask aobut it. I would rub this cream directly on my neck, then cover it with a "mesh type bandage" that looked like skin graff and then cover all of that with guaze. As for the dry mouth, throat...I konw it sounds crazy, it seems water made my mouth more dry  I used almost room temp milk to keep my throat lubricated. Hydration is important as you know...as is protein intake. Keep us posted ... Best, Tim
Tim Cogdill Base of Tongue Stage III w/ 1 lymph node SCC HPV + DX October 2011 Last Radiation January 2012 Most Recent Scans have been NED
| | | | Joined: Oct 2012 Posts: 17 Member | OP Member Joined: Oct 2012 Posts: 17 | Thanks Tim. Where can I purchase this SSD by Dr. Reddy's? Is it over the counter?
Barbara/Babs/BJ Oct.8,2012 SCC BOT WITH LEFT NECK LYMPHADENOPATHY Mod rad neck dis,left, levels I through IV partial gloss microdirect laryngoscopy with biopsy bronchoscopy lingual tonsillectomy HPV rad-rapid arc imrt x35 cisplatin x3
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Bring your cream to the hospital and put it on immediately after. If you aren't already.  also flatten club soda and drink it Luke warm it will help soothe your throat. 
Last edited by Cheryld; 11-17-2012 10:13 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Silver sulfadine cream is by prescription only. There are many different creams available to help. I found prescription Beta Val cream was what worked for me, others swear by aquaphor.
Always pat the cream on the skin, never rub it in. Allow it to soak in. Prior to any radiation treatments, remove the cream or simply avoid putting any on a few hours prior to treatment. I would pat it on in the car on my ride home. My skin was a mess but I didnt scar at all. The cream will greatly help!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | If it's available to you try Glaxal Base. Not greasy but terrific.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Oct 2012 Posts: 17 Member | OP Member Joined: Oct 2012 Posts: 17 | Thank you for the various cream advice--I'm getting quite a collection and trying them all. The aquaphor is just so greasy.
Barbara/Babs/BJ Oct.8,2012 SCC BOT WITH LEFT NECK LYMPHADENOPATHY Mod rad neck dis,left, levels I through IV partial gloss microdirect laryngoscopy with biopsy bronchoscopy lingual tonsillectomy HPV rad-rapid arc imrt x35 cisplatin x3
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I used aquaphor before, and worked fine, but this time I used Cetaphil moisturizing cream, and is not greasy at all, and worked very well. I also used Cetaphil liquid cleasor in the shower. I bought both at Costco's.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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