| Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | To answer Anne Marie question about price comparison. I just looked on Amazon and they sell a 4 pack for 12.38. From Axcan a 4 pack sells for 10.00. I buy them 3 (24 pk) boxes at a time and it's roughly 150.00 includes shipping. 72 pkgs. I think the manufacturer is cheaper.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I just checked on Amazon and Scandi Shake has several varieties. Which is the one you are using? Is it the weight gain one? ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | II went to Amazon's OCF link just now at: Amazon Scandi shake And when I punched in "Scandishake", the "Black Friday Deals of the Week" came up with what looks like some good deals on Scandishake, one of them I noticed was 1 case (36 each) for $106.18 (down from $205.34). Don't know how long the "Black Friday" deal lasts, but it might be worth checking out.
Last edited by ChristineB; 11-24-2012 05:43 AM. Reason: fix link
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2012 Posts: 118 | Christine,
The Scandi-Shake that we use doesn't appear on the Amazon.com website. That's not to say they are not the same. My husband likes the strawberry flavored instant shake mix that has 600 calories when mixed with 8 oz. of whole milk. I decrease the mix by 2 oz and a big scoop of vanilla ice cream extra rich and they told me at the hospital that bumps it to 800 calories. He really likes these because they taste like a real shake. He uses Ensure plus when we travel but they have a mediciney taste for him. I also get their Scandi-Cal which is a tasteless powder and add 3 tbsp to each shake. (1 tbsp. = 35 calories) I can bump his shakes another 100 calories and he doesn't have to drink as many. They really fill him up. I understand that Amazon donates to OCF but they seem a little high. I buy directly and get 72 packs for $150 and no shipping. I'm not sure what the scandi cal costs but I just ordered some and when I recieve it will post that price as well.
I often buy the vanilla as back up for when Reg gets tired of the strawberry. With the vanilla I can add all sorts of fruit to give him different flavors and textures. I think it's a great way to get calories and it's what the Dr.'s at the hospital recommended.
IT also says on the pkg. Calorie Rich Weight Gain. The pkg. is white with red lettering
Hope this helps.
Last edited by Bette; 11-24-2012 06:28 PM.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06) tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09) tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12) Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | Joined: Nov 2012 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2012 Posts: 58 | My husband thinks the Ramen Noodles are the tastiest of everything. The RO recommended dropping an egg into the soup as it cooked. The egg is tastier and it is more nutritional than just the noodles.
Stacey (Caregiver to Husband) Lymph Node Removed 10/12 Dx SCC MET 10/12 No Primary Tumor Found IMRT x 33 (Started RT late 11/12) CT Scan and PET Scan Clear 4/13
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | I remember beating the egg first and then dropping it slowly into the soup when my kids were little. It made tiny thin pieces of noodles and that went down very easily.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Feb 2013 Posts: 3 Member | Member Joined: Feb 2013 Posts: 3 | I am a first time reader, member and poster. 2012 was a rough year with my diagnosis, 5 - surgeries and 33 Radiation treatments. As of today they say I am cancer free however, I have lasting effects I am still trying to deal with. My jaw is at a 13 gauge per my Therabite gauges as well as my physical therapist. I am trying to get my feeding tube removed but right now I am dependant upon it. I am aggrevated at this point because I can't eat anything with acid in it or anything to pasty. I am looking for ideas because my tube is coming out Friday. I keep getting infections around it and the stitch broke free from my stomach which held the tube in place.
I am looking for advise at this point. I don't have the money to buy cookbooks at this time due to outstanding medical expensesand my loss of income.
Ima Pierce Mucoepidermoid Carcinoma T4A N2B MO Stage IV-A Lost right palate of my mouth. An opterator closes the gap between my mouth and Nasal Cavity. I have sinus infections/swelling on my right facial area. I can not open mouth enough to get a spoon in. All lymph nodes in my neck/chin are gone.
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | It seems like you should stay on the PEG for a bit longer if you are feeling taking all your liquid and solid is going to be hard. Also the cans for the PEG should be covered by your insurance so no expense. When you go off PEG you have to purchase all your food.
Charm just starting a thread on BD (Blended Drinks) recipes, tune in over there.
Good luck, don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Hello,Everyone,
I have been experimenting with recipes that are nutrient rich and tasty with a smooth consistency. My goal has been to offer alternative meal choices to my husband, Clark, that are palatable. I have a photo of the finished dish but I don't have a way to post it. Any suggestions? It seems that I need a weblink to get it on here, but I could be wrong.
I use a blender for the following soup but if you have a Vitamix, all the better. Before you use this soup in your PEG, or J tube, you may have to add water. The best part about this recipe is that it is so good to serve for anyone and everyone!
Hearty Vegilicious Puree
Too many vegetable soups have little or no protein. I developed this recipe with the goal of combining ingredients that would be an excellent source of protein, carbohydrate and fat all in one bowl. The result is a colorful, tasty, full-bodied puree perfect for dinner on a cold winter night. Include a loaf of crusty Italian bread and watch it disappear! Large Yellow Squash 1/2 Red Pepper 1/3 Sweet Onion Granny Smith Apple cored Medium Zucchini 2 Large Carrots 3 Cups Chicken Broth 1 Can Great Northern Beans or Cannelini Beans Salt and Pepper Extra Virgin Olive Oil Plain Greek Yogurt Minced Fresh Parsley
Cut first six ingredients into chunks, place in medium pot with 2 cups chicken broth. Cook gently until carrots are soft. Cool. Puree in batches and return to pot. Drain and rinse beans, adding them to blender with remaining chicken broth and puree. Add pureed beans to pot and stir to combine. Add salt and pepper to taste. Reheat mixture til hot. Ladel into bowls, drizzle with olive oil. Add 2 teaspoons of greek yogurt and chopped parsley. Serves 4.
Enjoy- Anita
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Apr 2013 Posts: 9 Member | Member Joined: Apr 2013 Posts: 9 | Wow, so many great ideas. I'm hungry!!!! Looking forward to trying many of these suggestions, thanks.
-Dan
11/2012 - Symtoms: earache 12/21/2012 - Diagnosed SCC, right tonsil 1/21/2013 - First Treatments, weekly Erbitux, Cisplatin, daily Ethyol, 7.5 weeks daily radiation 04/01/2013 - Last day of radiation!
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