| | Joined: Sep 2012 Posts: 74 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 74 | Thank you, Christine! You're absolutely right. I'm all for moving forward without any "what ifs" and time always flies. I'm a pragmatist at the core.
mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads
| | | | | Joined: Sep 2012 Posts: 74 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 74 | A quick update - my revised signature pretty much says it all. My surgeries went well, and I'm recovering nicely. My surgeon turned out to be great personally as well professionally. I think we were both having bad days at our prior meeting. The bot tumor was removed with clear margins and all 92 nodes removed in my neck dissection were clear of cancer. There was swelling and inflammation present of unknown origin which is what caused the PET scan to "light up". They tested for fungal and other organisms with negative results and believe it may be related to my graft-versus-host disease. I'll follow up with my transplant doc for that. My case was reviewed again this morning by the tumor board, and they were all in agreement that I don't need chemo or radiation. This was what we were hoping for, walking the fine line between curing the tongue cancer and relapsing the blood cancer. I have my 2-year bone marrow biopsy 12/6/12 and am hoping for more good news on that front! I'll have a follow-up MRI in 2-1/2 months for my base of tongue.
Thanks to everyone who provided input and support!
Karen
mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Now you can concentrate on total recovery! Congrats on the no rad/chemo recommendation.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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