| | Joined: Oct 2012 Posts: 33 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Oct 2012 Posts: 33 | Hi Max,
I, too, have had a stressful couple of years, and have often wondered if that could have caused this cancer. Then I am reminded of all of the happy, relaxed adults and children who also end up with this disease. I am convinced that there is an unknown viral/environmental component to this sudden increase in oral cancers in the young population.
Whatever the case, it certainly has made me change my priorities and has made me appreciate all which I previously took for granted.
Thanks for sharing and I wish you well.
10/2/12 Surgery Dx Stage II SCC RLT
11/12/12 Further tongue resec and SND. 3 of 22 lymph + SCC Stage IVa
11/22/12 Hospitalized for infection incision at neck
12/5/13 PET scan tumor at BOT
12/26/12-2/27/13 RT and Cisplatin
4/1/13-5/17/13 3 rounds of Cisplatin, Taxotere and 5-FU
7/19/13 Pet Scan possible recurrence
8/23/13 2nd op at MSKCC, CT Scan
8/31/13 MRI. Both show sizeable mass
9/11/13 CT-guided needle BX + SCC
10/1/13 Erbitux, Cisplatin and Taxotere
2/14/14 Passed away
| | | | | Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2011 Posts: 126 | i second katie's opinion... prior to my diagnosis i was always pretty relaxed, happy, and at ease. I try to get back to that state now, but it is certainly hard with the constant fear of recurrence. hopefully they will figure it out one day!
Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hey there the wait post op is necessary regardless of the biopsy results tough it does make you feel in limbo - it takes 5-6 weeks to recover from the surgery though you should feel okay after the first two weeks. Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2012 Posts: 112 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2012 Posts: 112 | Wishing you all luck of the world 
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | Dear Christine,
My apologies for breaking the rules of your forum. Of course, I should have considered that this forum provides thorough background of oral cancer from medical point of view and people look for help here that is scientifically/medically proven and will certainly work for them.
There might be other non-medical methods of treatment but it is not clear how they work and whether they work at all or not.
I am therefore changing the whole post to make sure there is no misleading information.
Regards
Max
Last edited by Max1987; 10-25-2012 03:09 PM.
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Katie....First, I apologize for hijacking your thread!!!!! Im very sorry but I am required to moderate the forum and edit things as necessary. Only thru a biopsy can a cancer determination be made. That is the only way for sure. Several things can look like oral cancer when they are not. If your mother never had a biopsy then it cant be proven that she had SCC or some other ailment. The usual ways someone gets oral cancer is HPV+, smoking/drinking or some have no known cause. Studies have not yet proven any link to hereditary as far as I know. This site is dedicated to only providing factual medical advice. Surgery and radiation with or without chemo are what works. Any other approaches to curing oral cancer are NOT scientifically proven to be effective. Max, I have removed your video as it is promoting unsubstantiated claims to curing oral cancer. The other thread with the video has also been deleted. In the future please refrain from posting things like this on the forum. If you would like one of the admin's opinions on something, please send them a PM and not post it on the forum. This is one of the major rules of the forum, not to post any unproven treatments. The internet is full of false claims and cures in which many people trick and deceive others into buying their products. Anyone could stumble across that video and not know the full story thinking OCF supports this since its posted on the forum. This could result in that person not obtaining the correct medical treatment. If someone delays by trying undocumented cures then it could easily become too late for conventional medical procedures to work. Just because something is on the internet doesnt make it true. Our website is bound by the Health on the Net Code which certifies OCF provides correct medical information. This is not up for discussion. -------------------------- Any replies, please stay on topic which is Katies situation. Thank you!
Last edited by ChristineB; 10-25-2012 06:06 PM.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Katie Sorry you had to join the cancer club. I just wanted to stress that "stress' does not cause cancer nor does "living in harmony" cause "all diseases to pass by". That assertion is just another aspect of woo woo medicine. Long time readers know just how upset I get when posters link to web site or say this nonsense. (Max is lucky I've been off line for a while and missed his egregious violations as I am not as temperate as Christine when I spell out just how delusional such claims are, especially since he still left that woo woo nonsense in his post after claiming to clean it up) It is natural for all of us "to often wonder" if stressful years caused our cancer because we are deluged with woo woo in the news, TV and internet. Of course now the marketers have renamed it CAM or Complimentary Alternative Medicine Since I am so snarky and mean and outright nasty in my denunciations, I find it better to post excerpts from more temperate articles debunking the central dogma of most of the fake CAM or quackademic medicine [quote]Wishing for healing heals. Alternatively, it can be stated somewhat more accurately as: You attract health to yourself. Note that this is just like The Secret, only for health. ;note Secret is FALSE[/quote] [[quote] Who wouldn�t want to be able to increase his or her chances of surviving by finding a way to overcome depression or negative thoughts.... Unfortunately, the flip side of that �empowerment� is the implication that if you are not doing well or, if you are a cancer patient and are deteriorating, it must be because you don�t have a �positive� enough attitude. Barbara Ehrenreich pointed out the toll this sort of thinking takes on actual cancer patients in her book, Bright Sided: How the Relentless Promotion of Positive Thinking Has Ruined America, even going so far as to entitle a chapter Smile or Die: The Bright Side of Cancer...[/quote] [quote]In other words, we bring cancer on ourselves by allowing immune systems to acquiesce to stress, tension, and negativity in our lives. Note this is also FALSE[/quote] This is so wrong and yes, even doctors who should know better promulgate this stuff. Don't be fooled. It is not your fault you have cancer (except at the genetic level). The toxins in our environment have been proven time and time again to be carcinogenic. The full article from Science Based medicine can be found here, It deals with more than the stress fallacy. Central dogma of CAM This is a hard road we are on, and unnecessary guilt will not help you beat it. Like one of the OCF speakers at an OCF walk (go to one, they are great) said: Be the one to put the can in cancer, the rad in radiation and the emo in chemotherapy Keep the Faith Charm
Last edited by Charm2017; 10-26-2012 11:03 AM. Reason: added false to quotes so fools dont take out of context
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | Hello Charm,
You have mentioned the famous "The Secret".
Have you read/watched it?
What is your opinion? Is it totally woo woo or is there any part of truth?
Sincerely
Max
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Max
The fact, not my opinion, is that the Secret is total fraud. My opinion is that onnly a desperate gullible person would believe that a guy who worried about his bike being stolen and then it was, shows the Secret works. Seriously, why not read the whole link to science based medicine article I posted so you can see just how stupid the Secret is
I know you are young and want so hard to believe in magic but it's a muggle world, There are no magic wands.
I've read the Secret and laughed out loud. I watched it and almost cried in thinking that some people believe this stuff.
Of course I did not waste my money on the book or dvd, they were sent to me by well meaning colleagues who I used to think had logical ability. I know better know.
The secret should be infamous, not famous.
It sets the stage for the first wrong and erroneous assumptions of reality so the "logical' conclusions people draw from it are flawed.�
The real secret is that there is a sucker born every minute to buy woo woo like that.
You want real help in recovering from cancer: eat right, exercise, do yoga, get real massages, (not phony reiki).
Don't let these charlatans prey on you.
This book and movie is an insult to each and every cancer patient.
Charm
Last edited by Charm2017; 10-26-2012 10:01 AM. Reason: toned it down
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | There's the Charm we know and love
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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