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Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
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Ive seen some patients work right thru their treatments while others are too sick right from the start. Alot depends on what kind of work you do. A physical job would probably be next to impossible for most to do after about the 3rd or 4th week. I was pretty sick and stopped working about week 2. Its all about nutrition, the better you do with your hydration and nutrition, the easier this will be for you. Every single day take in a minimum of 2500 calories and 48 oz of water and you will do better and be able to work longer into this.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Bill worked quite easily thru week 3. He started feeling rough during week 4 but still labored on. Week 5 he was pretty weak and sick and work came to a halt. He landed in the hospital (fever) the beginning of week 6..missed three treatments but finished only three days late.

By the third week after treatment, he was back at work full time.

YMMV, Deb



Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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Posts: 493
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Joined: Nov 2009
Posts: 493
I want to add that I was the Director of a small public library, and therefore, had a lot of responsibility. I was, however, able to keep in contact several times a week, though, and could even work online updating our website and ordering materials online. I also had an amazing staff, and a very supportive community. My husband went into the library frequntly, and would bring me updates, abd things that I could work on at home.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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Hi Curly, my husband completed treatment one month ago. His med onc told him that he would not have the energy to work through chemo-radiation. As luck would have it, my husband was able to work almost all the way though, missing only one week when he was not in hopsital. I do think it helped him a lot emotionally to remain working. I was fine with it, as long as he took the time to rest when tired, and do all the necessary exercises, lotions, hydration and nutrition...which take more time than you think they would.

My husband has a desk job, making it easier to stay working. He was also lucky not to have any problems with "chemo" brain. Very much agree with what Christine said, staying ahead on the nutrition curve was essential, both so he had the energy to work and to make it through treatment.


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
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curly Offline OP
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Thanks. I have a desk job but I am a fundraiser and really need to talk quite alot. Going to take each day as it comes!


Stage 1 tongue carcinoma in 1999 and again in 2001, removed surgically. Stage II tongue carcinoma in 2012, surgery, neck dissection, flap from forearm, trach (removed in hospital before leaving). Finished 30 rad tx on 11/28/12.

Jessica, age 38
Joined: Jun 2007
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I work for the State Highway and managed three weeks of work, but started plowing snow two weeks after treatment, the ist storm we worked for 19 straight hours with four hours off, so everyone is different. Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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curly -
would you be able to work from home / work part time? The talking did bother my husband if he did it too long, but was able to manage if he could rest periodically.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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After 5 years, talking STILL does me in, damn dryness....



18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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curly Offline OP
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I was going to try to work from home but I have to be in the city for treatment anyway so it is not like I do not have to travel in you know? I am not sure how much they will go for that anyway. Kevin, I went out a bought a water bottle holder for my purse which came today. Figure I might as well be prepared. Thanks so much for all the replies.


Stage 1 tongue carcinoma in 1999 and again in 2001, removed surgically. Stage II tongue carcinoma in 2012, surgery, neck dissection, flap from forearm, trach (removed in hospital before leaving). Finished 30 rad tx on 11/28/12.

Jessica, age 38
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A water bottle is something most all of us carry at one time. I still have mine in the car.


18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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