| | Joined: Apr 2012 Posts: 111 "OCF across the pond" Senior Member (100+ posts) |  "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2012 Posts: 111 | Oh yes I remember the constipation with horror during the first chemo round! I was prescribed Laxido sachets which tasted disgusting but I made damn sure I took them and they kept the problem at bay after that. I tried a few things for nausea, but can't remember what just now. Ask what alternatives they can offer. I was told that there were many different drugs to try. Good luck with find the right ones for you. Sally
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
| | | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2012 Posts: 214 Likes: 1 | Hi all,
Two weeks down, starting third week. No chemo this week just daily rads. However the rads are really starting to hurt my mouth. It hurts to east, drink, and brush my teeth.
I have started to use the dental trays. But what tooth paste should I be using?
I am eating cereal with milk for breakfest and lunch, and a few bites of whatever I make for the family for dinner. I also drink 4 boost plus per day. I can't taste anything any more. I just ordered the VHC Boost 4 cases.
I am currently not taking any pain meds other than tylenol. I also take two stool softeners per day.
5 more weeks and 2 chemos to go. This has been the longest two weeks I can remember.
Tomorrow I meet with thw rad doc. Whad pain meds should I get?
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Hi, One thing that I did was using viscous Lidocaine. It is local, it only lasts for 20 minutes or so, but it helps with swallowing and speaking. It allowed me to dial down the more potent meds. Here is a link to a NIH site http://www.nlm.nih.gov/medlineplus/druginfo/meds/a682701.htmlnot sure if this is allowed. If not SORRY guys. Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The link is ok, Marcus. Its not selling anything and is a government site.
Nice to see you posting again!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | Try Biotene tooth paste. And the spray is good too!
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
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