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Joined: Sep 2012
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Joined: Sep 2012
Posts: 64
Karen, I have been researching acupuncture as a treatment for dry mouth and have read about several of the studies including ones at Sloan-Kettering, MDAnderson and Mayo Clinic. It appears that there is scientific verification of acupuncture as helping to produce saliva. I have a local acupuncturist who is willing to work with me and we used a treatment protocol developed by Dr. Niemtzow who is a M.D. who developed the treatment while working as a Doctor in the military in a military hospital in Southern California. The treatment did not work for me and I am looking for another protocol to try as I have heard from former cancer patients who have tried acupuncture with success.

Also, do you have a web address where the R.Simock paper can be found?

I would very much appreciate it if you would give me contact info for your acupuncturist so that I can get a treatment protocol from him/her to try.

Thank you.


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
Joined: Sep 2012
Posts: 64
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 64
Karen, I was hoping that I could contact the NIH on my own to locate your acupuncturist but that clearly is an impossible task.

The study you reference was done in the UK so I don't want to have to call there.

The NIH is huge and includes the NCI, help tracking down the acupuncturist that you used would be greatly appreciated.

Thanks, John


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
Joined: Sep 2012
Posts: 64
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 64
I've been trying the Acupressure recommended and it does seem to produce some immediate results. Not long lasting but the cumulative effect of doing it daily may be. Thanks for the suggestion.


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
Joined: Sep 2012
Posts: 74
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Sep 2012
Posts: 74
Hi John,

So sorry for the delay in reponding to your message. I just got out of the hospital today and am still catching up on my reading and replies.

I'll send you a PM with NIH contact info from last year. Even if it isn't still good, it should get younto someone who can pointbyou in thevright direction. Best of luck and please keep me posted on what happens!



mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads
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