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| | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Garrett, a CCC is a comprehensive cancer center. They are the top cancer facilities in the US. A whole team of specialists discuss each individual case and work together to develop a treatment plan for each patient. They follow NCI guidelines which lays out what course of treatment will give the patient the best outcome. Cancer Centers
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2012 Posts: 13 Member | | Member
Joined: Sep 2012 Posts: 13 | Thanks for the clarification about the CCC's. So Yes and No. I went thru Penn Medicine as a whole. They have two cancer centers. My doctor, who happens to specialize in sarcoma practiced out of the center that was not designated a "CCC" but he's one of the two or three sarcoma specialists within 40 or 50 miles of my home... at least. I felt he was a good choice. In my opinion, definitely took great and consideration making treatment plans for me.
I also know Penn Medicine happens to have something called a "tumor board" where large teams of different specialists discuss treatment options (I'm not sure if it was for all patients, but I know for a fact I was discussed).
I'm by no means a medical professional, but I do have an educational background in bio/chem so explanations had the potential to go in depth. I asked tons of questions and felt pretty good about most answers. I'd say the only thing I really rushed into was the surgery itself, just because I personally believe I've had the mass for a long time and wanted it out.
Wendy - Thank you for that awesome reply. I appreciate it.
Thank you all.
Wrong DX since 05
Tx Since 11/10 3 KTP laser surgeries
Correct DX Sarcoma Tongue 9/11
5 cycles doxerubicin + ifex 11/11
35x IMRT 03/12
Near Total Glssctmy/Right Nck Dsct + Trach + PEG 9/7/12
Recovering Nicely.
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