| | Joined: Sep 2012 Posts: 2 Member | OP  Member
Joined: Sep 2012 Posts: 2 | I just found out that I had cancer of Larynx,tongue,and thyroid,I want to say I give up,then I look at my lovely family that I and my husband have made,(30)years.that wouldn't be fair to them.I need to have PLEASE PLEASE help to get me Thur this,can anyone out there help? I am 56 years old,just lost my sister to lung cancer,my best friend to all over cancer,I just need encouraging words,please,thank you
Last edited by ChristineB; 09-26-2012 05:53 PM.
| | | | | Joined: Sep 2012 Posts: 2 Member | | OP Member
Joined: Sep 2012 Posts: 2 | Can we become Friends over INTERNET?
Last edited by ChristineB; 09-26-2012 05:54 PM.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Carla. it's great that you have a wonderful family. The road ahead is very hard and I'm sure a lot of us contemplated, at some point, just quitting but a strong family and good friends help us through as do the friends we make on this forum. Surround yourself with the strength of family and friends and you can do just about anything.
Last edited by ChristineB; 09-26-2012 05:54 PM.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Hi Carla,
Welcome to OCF. This is a wonderful place filled with people who have experienced many different diagnoses of Head and Neck cancer. Treatment is tough but so worth it. Where are you being treated?
If you will give us some more information, I am sure there will be many who will respond. At the top of this page you will see "My Stuff". Click on that and on the left side of the page you'll see "Profile." Click on that and fill out the info. It will help all of us to get to know you better and familiarize us with your situation.
There is tons of info on this site, too. Knowledge is power and the more you know, the better you can deal with this awful disease.
My best to you!
Anita
Last edited by ChristineB; 09-26-2012 05:54 PM.
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Carla,
You have found the right place for getting through oral cancer. Both my brother and I have fought this disease and are still with our lovely families. This is a fight you can win but the road is hard.
If you go to the top of the page and click on forums you will find a catagory named "intoduce yourself" Click on this and start a new conversation. This way all the folks here can answer your specific questions as you mive forward in KILLING this disease.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome Carla! As I sent you thru a PM, I have moved your posts to their own thread. This will get you the most responses. Stick with us and we will help get you thru this. There is tons of info here so I encourage you to read and learn about your disease. A knowledgeable patient is able to advocate much better. We will help you with info and support. Sorry but for your own safety I have also removed your email address from your post.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi Carla... Welcome... Very sorry you have to be here. I lost my mom to lung cancer I know it's hard. Location wise it sounds like you may have an advanced base of tongue cancer. Ask to be tested for HPV - it will help when it comes to deciding on treatment. We've all been through this in some way or another, you can get through it to. Ask any questions you may have the people here will try to help and answer.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2012 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2012 Posts: 31 | Hi, Carla:
I'm sorry that you have to be on here, but this a good place to be because we have all been down this road. Family, friends, people on this forum can all be a great source of strength and encouragement; and I hope that you will utilize all of them. Good luck to you!
Tim D., 43, married (Maurine), San Antonio, TX. Two-time OC survivor, first diagnosis May 2010 - partial glossectomy + neck dissection (17 nodes), recurrence Jan. 2011 - chemo + 2nd neck dissection (18 nodes) + radiation, completed treatments 4/28/11, PET/CT 12/23/11 - clear, scans 6/29/12 - clear
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Hi Carla,
We can absolutely become friends on the internet!! I know that there are a number of people I could write to at any moment and they would get back to me as soon as they could. We are here for each other and understand the ups and downs.
Keep in touch. Whether it be to cry, yell, grovel or just ask questions, we are here!!
Blessings,
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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