| | Joined: Sep 2012 Posts: 74 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 74 | Charm, love your remake of the song. I like the Everly Brothers version better than Ronstadt's but both are good, also. I may use for a future tagline.
Michael (husband) and I do something very similar between ourselves, making up new lyrics. We also come up with apropos lyrics from songs for each of our blog headings and ask our readers to "name that tune". We even have a private list of songs we haven't used, not wanting to offend those who don't share our sometimes twisted sense of humor, for example "My Wife and My Dead Wife" by Robyn Hitchcock (suddenly thought of Schr�dinger's cat - don't know why that didn't occur to me before now).
Anyway, I've been here a very short time but have already come to look forward to your posts. I'm so sorry for what you're going through but your spirit is an inspiration to all.
Best of luck to you!
mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Charm -
I've been off the forum & was off FB during the time you got the diagnosis, so this is the first I've had a chance to catch up. I can't add anything that hasn't been said. YOu've been an inspiration to so many, & I know everyone is praying for you and a good outcome. Take care,
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Marlene Thanks for the kind words.
Everyone: I finally got my treatment plan this morning.
Chemo this Saturday ; first of three weekly infusions of Carboplatin. (see my separate post where I am asking about Taxol being added as a "chaser" )
Then 5 more Cyberknifes starting next Friday October 5th and ending up on my birthday, the 11th. (when I will update my signature line to my new age)
My wife and I are so relieved to finally have the suspense over. Regular readers have probably deduced that I'm not a big fan of clinical trials which would have been my only alternative if they couldn't do a third round.
Another reason to go to a CCC, because many non CCCs think you can't do radiation twice let alone three times, while even the CCCs who don't feel comfortable doing it will recommend a place that does.
Charm
Last edited by Charm2017; 09-24-2012 07:22 AM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Good - glad you you have your plan in hand. I don't know if telling you I am sending my best wishes is entirely honest as I am a worrier by nature, but will certainly be fretting for your treatment to be lacking in drama and the outcome to be excellent.
Maria
Last edited by Maria; 09-24-2012 07:50 AM.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Glad you have your plan all set. I'll be thinking of you (and I'm sure many others will be) as you get started on your journey this Saturday. Wishing the very best for you and hoping for everything to go just the way it is supposed to!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so glad you are finally ready to begin. Im sure you and Bev are very relieved!!! Wishing you all the best with everything you will be facing.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Wonderful news, Charm. I wish you the very best, and it sounds like you're in good hands to get that. Your posts, and your latest problem, give hope to all of us if we ever have a recurrence and helps lead us in the right direction. Thank you for posting, and I pray for you to get an "ALL CLEAR" report in the future.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Good luck friend. Did you tell them I'll ride up and do a English/Irish CPA dancechant if they think it will boost your treatment's impact?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Hi, Charm,
I am sorry that you have to go through this again. I wish you all that is positive as you navigate this path. You are an inspiration to me and I am sad that you have a recurrence. You are in my prayers and I send you and Bev my very best. I wish that I could have met you at Susan's Walk but Clark and I took a much needed vacation--first one in five years! Hang in there, good man!
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | About bloody time!! I have been watching and waiting to hear what the plan was - and am now THRILLED that you are about to start. Now you can settle in and focus on dealing with what will no doubt be a tough treatment plan. Awesome!! You are now done with that "have it back b.s." and are finally on the path to it being GONE GONE GONE like the wind!! Great news.
Hugs
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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