| | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Aug 2012 Posts: 214 Likes: 1 | Where are you in your treatment? Are you eating anything solid?
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | DON'T stop the Lortab!! Holy smokes! Take more Miralax, or just go for the gusto and take Milk of Magnesia. They have some non cramping stuff now and my 87 year old mom is having success after her surgery. Don't wait too long though.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | HockeyDad. Yes I can eat solid. Today went to my moms and she had baked chicken, no salt or pepper, I chopped up a fair size piece, and ate it, also she made me an egg runny (like I like) and that was good, and creamy mashed potatoes. Also creamed corn but could not get the shells of the corn down. Corn is out.
I did use the magic mouthwash.
Then I did drink a can of the Jevity.
Think I will just do 2 cans tonite. Trying to stay off the surgar as the thrush is what I think my other problem is.
Last edited by MickeyW; 09-22-2012 03:47 PM.
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | KP5, will do the loritabs do help even the thrush...
I will drink more water and put more water thru the tube, because even water burns sometimes due to the Thrush.
I will start both Miralax and Milk of Magnesia tonite! Don't really feel as bloated as the other day.
Thanks EveryOne!
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Dont stop the pain meds. In fact many including myself have used the fentanyl patch for pain. It was so much easier and provided a steady dose of the pain meds. The doc can give yo a prescription for it. The patch lasts 72 hours before it needs to be changed. It will take about 24 hours to kick in when you first put it on. If you get the patch, read and follow the directions to the letter. No long hot steamy baths or showers or it can release too much medicine. Never cut, tear or fold the patch. Then your doc can give you some liquid pain meds for any breakthru pain.
Have you tried pineapple juice or karo syrup yet? They really will work for the little c. Just to warn you, karo syrup is sugar and you mentioned trying to avoid it right now.
Sounds like you are doing very well with eating and drinking, keep up the good work!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | Just ate 1/2 banana, with this thrush, it appears all fruits out...
I was wondering if I could rinse with water/vinegar solution ... women do it . . kinda ?
Has anyone tried it?
Oh, my lovely bride got me some biotein spray and mouth wash, it seems to do pretty good ..
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Never tried vinegar for thrush. Never even considered it (I detest vinegar). You are very creative!
Keep rinsing with the salt, baking soda and warm water. That should help to get the ph back to normal in your mouth. My doc told me to eat lots of plain yogurt too.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Bananas are the WORST. I never would have thought they had that much acid, but Kevin said they were just awful.
Go easy using Miralax AND Milk of Magnesia....it will work, but you may need to camp in the bathroom!! ;o)
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | Note, vinegar for thrush, not a good idea.
If it were not for the thrush I wouldn't be doing too bad.
I see both the RA OC and the MD OC tomorrow and will press the subject...
I just took 1/2 dose of MilkofMagensia with the Miralax.
I will continue to rinse and that is really the best thing right now.
Thanks you guys and the wonderful forum.
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
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