| | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | My mouth was on fire to day and after reading benscancerfight blogspot I realized I may have thrush. I called the RAD OC nurse and she said the doctor would have to check me when I come for my daily treatment. He gave me a script and I took 2 pills and 4 hours later my mouth is much better. Will this be a continuing issue?
I have not eaten much today, the little c has me backed up and my stomach is bloated. did eat cereal and yogut the morning, and 2 oz of jevity. Lunch was not to be...
Supper had more yogurt and 2 oz of jivity that barely would go in.
Nurse also said miralex for constitpation.. Hope it works.
I Have been drinking at least 6 bottles of water....
Wife got me some boost plus, I think I can swig one down before bed.
I feel better now.
Last edited by MickeyW; 09-20-2012 06:34 PM.
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | They actually had Kevin take Diflucan throughout IMRT. This prevented him from getting thrush. He still had mouth sores, just not thrush.
Kathy
Last edited by KP5; 09-20-2012 06:54 PM.
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thrush can be very painful. Make sure you take all the meds to get rid of it. I also changed my toothbrush at the end of the meds so I wouldnt carry over any germs and reinfect myself. Thrush can happen a few times during and after your treatments. Its just one of the 'little lovlies' that go along with getting treatments.
Sounds like you are doing a good job with drinking. Also your eating is holding its own. Try prune juice in your tube. If it seems thick, add a little water to it. For me, the pineapple juice worked the best. I have to admit, I just couldnt bring myself to use the prune juice. Years ago my pediatrician would have me use karo syrup in my daughters bottle when she was a baby. That stuff is very thick so if you try it you will need to add water. Its found in the baking isle.
Keep plugging along!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I didn't have thrush issues until post Tx but since then I have had probably 4 infections which required meds. Now about a year or so ago my dentist told me to consume some Activa every day and since then I haven't had any thrush issues. Whether that had anything to do with it I'm not qaulified to say but all I know is I haven't had any more thrush which is a VERY good thing.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Hum, will have to have my husband try the Activia. He is having to use the lozenges again.
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Avoid sugars it promotes thrush - make sure the yogurt is probiotic... And yes brush can be a problem... Take care!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | funny think is I eat Activia every day (blueberry) and take an acidophilus pill too. Been doing for years..
I finally got some Magic Mouthwash. Works pretty good. No news from the South boarder yet, but there are rumblings.
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Maybe over the years your good bacteria has made friends with the bad guys?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | [quote=davidcpa]Maybe over the years your good bacteria has made friends with the bad guys? [/quote]
Ha! Those traitors.
Still no go on the little c ?
Now just drinking jevity..and water...
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | Well did have small bowel movement, about 1/3 or 1/2 what I usually do. My mouth has been burning (still see thrush on tongue and it burns bad when i do the fluoride) and headache, so I have been taken loritab for about 1 every 6 hrs and 1 extra at bed. I know this causes constipation, should I stop for a day or two or is there more I can do for little c? Double dose mirlax,?
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | |
| Forums23 Topics18,251 Posts197,142 Members13,324 | | Most Online1,788
Jan 23rd, 2025 | | |
|
