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#154415 09-11-2012 12:49 PM
Joined: Aug 2012
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bdietz Offline OP
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I have never been on this site before,but my husband has been diagnosed with stage IV tongue cancer and will start the feeding tube, chemo and RT by the first of next week...do not know what to expect, but get a lot of advice by reading all comments...
Becky

bdietz #154421 09-11-2012 02:08 PM
Joined: Sep 2006
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I could reply in volumns. Let's start with do you have any specfic questions?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
bdietz #154426 09-11-2012 03:51 PM
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Becky, I would suggest you read and educate yourself. This is a rough road and isnt easy on anyone, not even the caregivers. I will back track and repost an reply I wrote earlier today on how to prepare. Nutrition is key to getting thru it easier.

Best wishes!!!

Tips to prepare

Last edited by ChristineB; 09-11-2012 03:52 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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