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Joined: May 2004
Posts: 218
Robr Offline OP
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Joined: May 2004
Posts: 218
All,

In regard to my previous post that references newer HNC studies. Try the Journal of Clinical Oncology web site http://www.jco.org/

Here is a link to a great new paper
http://theoncologist.alphamedpress.org/cgi/reprint/8/4/350.pdf

These papers are submitted by the leading physicians in HNC. Yes sometimes they cost money. But it


SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
Joined: Feb 2004
Posts: 162
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Hey Robert. I guess we're on the same page here. I had the same attitude about going to M. D. Anderson. This also fits in nicely with regard to one of your other posts: With the knowledge you've done everything within your power to get the best treatment available, you can take comfort in that fact, relax and enjoy life.

-Brett


Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
Joined: May 2004
Posts: 218
Robr Offline OP
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Posts: 218
Brett,


Thanks alot. M.D. Anderson was my second choice then Sloan Kettering.
But the protocol for treatment is exactly the same, and since I live in Northern IL already
U Of C was an easy choice. It's only an hour from here.

Thanks again, and you enjoy your life as well.

Robert

--------------------------------------------------
SCC Right Tonsil, T1,N1A,M0 treatment finished 2/13/04.


SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
Joined: Dec 2003
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I chose a university hospital for the research perspective but I also chose University of Texas Southwestern Medical School because the head of the GYN Oncology department and I became greatly aquainted when my mother went through treatment with an oncologist trained there and later at the same place. It was a little eary at first to see some of the same people that I saw with my mother but I could see her smiling down with appreciation!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Aug 2003
Posts: 1,627
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Posts: 1,627
I have to be honest here, I didn't get a second opinion nor did I even think about seeing another doctor. Half of this was because I just trusted my doctor from the minute I met him and half because me nor my husband knew any better. We simply did what the doctors told us to do. I was treated at Sentara Norfolk Hospital, it's the teaching hospital for Eastern Virginia Medical School. I had a team of doctors and a tumor board, all that stuff. They all communicated, right from the oral surgeon that diagnosed me to the dentist I see now for my dental care. It's a good feeling to go to all the various doctors and they all know each other.
There have been a few times that I wondered if I should have researched it more BEFORE my surgery and radiation, but in my heart I know I received the proper treatment.
The two weeks leading up to my surgery I didn't want to know a thing about it all, I just wanted to pretend it wasn't happening. Then I went into treatment and until I was done with treatment on July 10th of 2003, I didn't have the slightest fear. Then I started looking on the web and got a newsletter from SPHONC that scared the CRAP out of me. Until that time I had not realized just how serious my cancer was. I slid into quite a depression then I found this website.
So, any positive reports on strides being made for this cancer are worth reading.
Take care,
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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Posts: 164
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Posts: 164
Minnie,

I think we all know more than we did before we began this journey. If you have confidence in your physicians and feel good about your care that's really all you can ask for.

I was second guessing some of my choices, but then my doctor near my home said to me. You have made the best choices for you under the circumstances and given the information you had. I went to MD Anderson like Brett. I was assured that I had received the "gold standard" for treatment so that really helped me confidence in my decisions.

Keep the faith!!!

Lynn


Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,

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