| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So now I'm a Conservative Criminal? Will this abuse never end? Remember you are just a Young Frack but I am THE CoolFrack.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 |
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | I'm not a frack; I'm more of a fruck.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Od Frack, Young Frack, Cool Frack, Fruck - you are all Cool! 
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | Anne-Marie, there is NO WAY I could have typed that successfully, lol.
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | I once was a very young frack,
Till I suffered a lymph node attack;
So they slit up my gullet,
Just like a red mullet,
But since then it's never been back!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Cool poetry! How about "Frack Attack" for a title?
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Oct 2011 Posts: 7 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Oct 2011 Posts: 7 | Hi all, I've just caught up on the many conversations on HPV. I can see it's been an active topic! One question that I didn't see answered was if anyone knew the accuracy of the oral HPV test that is offered at many dentist's office. You gargle a saline solution for 30 seconds that is then sent in for PCR testing. It tests for many genotypes. Does anyone have any insights? Does it measure a point in time? i.e if negative, you've never been exposed or don't have active infection. If positive, active infection that may clear? Any knowledge appreciated! Thanks, | | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | [quote=Alcajazz]One question that I didn't see answered was if anyone knew the accuracy of the oral HPV test that is offered at many dentist's office. You gargle a saline solution for 30 seconds that is then sent in for PCR testing. It tests for many genotypes. Does anyone have any insights? Does it measure a point in time? i.e if negative, you've never been exposed or don't have active infection. If positive, active infection that may clear?[/quote] The test has been discussed in this thread. My dentist offers it, but notes that it is of limited use because it does measure only a specific point in time.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Apr 2012 Posts: 47 "OCF across the pond" Contributing Member (25+ posts) | | OP "OCF across the pond" Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 47 | CubanKeith Still in the casa? Hey David and Eric having a good chat.People say I stereo type why not, I can call it profiling from now on.For a catch up I asked and got the biopsy it is HPV 16. I am entering week 10 for 4th Bag Cisplatin and 2 more weeks radiation.I feel like jimmy Cagnay in the movie?"Boys Town" they will be taking me down the corridor screaming I am so scared of how this has built in me, also in LONDON i have spoke with a DR who treats feet and hand papilomas with Candula, he was doing research into seeing if HPV responed to Marigold therapy, well I have my herbal mouth wash. I hope my post has come up and is sort of clear? I love my PEG forcing food down led to rotten food and nasty mouth, I drink water for swallowing and use my PEG for sustainace. My PICC will come out and I can consider swimming again soon. My helpful hint is use a Nebulizer for clearing Gunk in throat and mouth. Medals to every one who has gone through Chemo radiation so many heros. " Little pain for the long term gain" from another user thanks.
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
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