| | Joined: May 2012 Posts: 114 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: May 2012 Posts: 114 |
Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Great news sweet girl!!! I am hoping and praying that this goes away forever for good!!!!!
XOXOXOX Kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | I should rename this thread "New Primary Tumour". It's not a recurrence. I wish I could say "It's not a tumour!" (like Arnold in "Kindergarten Cop")...ha, ha! But, seriously, this is a new cancer and still not known if it's HPV+ or not. It's been 2 weeks. I called the cancer center again to see if pathology has a result. I guess it seems like longer than 2 weeks because I know I have this cancer in my body and I'm anxiously awaiting treatment to begin. I have an appointment this coming Monday to have my chemo port placed via interventional radiology. Also, waiting on rad schedule. All of this should happen in the next 1-2 weeks. In the mean time, my husband and I are going to go away for a night...no kids, no distractions...just us...before the battle begins. We really need this. I just passed my first cancer-free anniversary at the end of March. It seemed like some semblance of normalcy had started to set in, then BAM! F'n cancer! I'm scared. I have about one melt-down a day, short and effective. Then I try to put the demon in a box and imagine myself kicking it around, taking a baseball bat to it, whatever...I guess I have a lot of anger, too! All normal, I know. It's easier to be angry than sad, but I waver between both. Regardless, each day I see plenty of reasons to be grateful. I know I have so much more than some people who aren't as fortunate. I have love of my family and friends who will do anything in my power to help me. I live just north of a medical mecca where I am getting top-notch care. As you may well see, my emotions are all over the place. I'm trying to do the best I can. The other day, I took a long nap and I woke myself up laughing hysterically. I wish I could remember what was so funny! That would be nice!
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Hopefully they get the final results back SOON!!!! Did they get all your scan results? You were waiting on your chest too... ? Hopefully all is clear and it's HPV - though you are very young for it to be HPV - I'm just saying it because it responds well.  prayers, thoughts, and hugs for you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Kerri,
you are a badass my friend and I love you for that...well that and we have similar tastes in music, movies, humor etc. You and your family are amazing and you will get through this together, this I know.
With you in spirit my dear friend...keep your chin up.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Kerri
For you to take the time, and have the empathy to post a second post of support to me, after you have just found out this terrible terrible news, astounds me. A new primary tumor, after the first seemingly good news from the Petscan, must be devastating. Yet, you are still thinking of others.
Letting that "demon" out and then boxing it up and whacking it is a good plan. I hope you and your husband can get the night(s) off together you need and soon. The cancer coming back or a new primary tumor is the worst nightmare any of us have - except when it's not longer a nightmare but reality.
You have the right attitude, a loving family, and good medical care: all independent prognostics of beating this.
I will add you in my prayers and thoughts. It's so unfair that kind, gentle, sensitive people like you get dealt such hard hands in life. Let's just hope we have happy endings like Job did in the Bible. Keep the Faith
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | My heart breaks for you, Kerri, that you have to face this again. I am thinking of you and keeping you in my prayers.
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Charm, You are an amazing person who has helped countless people after all that you have endured. You deserve more than a break, my friend! xoxo Thank you, Eric. Yes, we are kindred spirits! Cheryl, my PET/CT was clear, thank goodness! Still waiting on HPV results. Also, I have a question for you. I know you used to work as a nurse. In all reality, how long do you think it will be before I can return to work as a PT?
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Jan 2012 Posts: 112 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2012 Posts: 112 | Kerri, i was sincerely chocked. And afraid of course, because your case (t1n0m0) was really like mine. OMG!
I just cant understand how can this happen! What where your symptoms? Like a tonsilitis? Can you explain?
I really would love from you and the advancing of your treatment and cure.
Love
Braziliangirl82
December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
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