| Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2012 Posts: 50 | Hello. I had stage 2 well differentiated tongue cancer. Had part of my tongue removed then had radiation for 6 weeks Monday through Friday on both sides of my mouth. I'm 2 months out of radiation and 6 months from my operation. Everything was going great until yesterday I woke up and my tongue had a sharp pain on the opposite side of where my cancer was. It looks like a small cut but I'm scares death it has come back just as thing started to get better. I'm thinking maybe I hurt it while eating normal food. Called my oncologist. She said to wait until Monday and if it wasn't getting better schedule an appointment. She said she think that since I've only been talking and eating normally for two weeks I probably just injured my tongue but I can't calm down. What do you think?
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | Hi, My gut feeling is that you should listen to your oncologist. Yes, it could be something I suppose, but likely that you injured it somehow, and it is easy to do. Your mouth has been radiated so it is both sensitive and suceptible. I remember biting my tongue early on as well. It scares you even when you know you bit it. Have it checked out, but try not to stress about it. I know it is easier to say/write this statement than to actually not stress, but it sure won't do any good.
Best, Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
| | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2012 Posts: 50 | Thank you for responding to me. It means a lot. I'm truly hoping I just cut it on my tooth from the awkward positions I have to maneuver it to eat. I'm salt water rinsing every chance I get.
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | No prob! Make sure you have baking soda with that salt so you can neutralize the acid environment. It will dry your mouth out though. From what you just wrote, I am as sure as I can be long distance that you just injured your tongue. It won't be the last time either. Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
| | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2012 Posts: 50 | Yeah. I kind of jumped right in and just started plowing through foods. When I found out I could eat pizza that's all ive been eating. It looks nothing like the cancer I had. It looks like a tiny cut. I started putting kanka on it and salt water and straight salt and it has turned white. Like a white tiny line.
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2012 Posts: 50 |
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Honestly my tongue was so swollen at the it would rub against my teeth on th good side and cause pain. I'm 17 mos out of rad and some foods still set me off and cause soreness. It's bery possible you'v hurt you tongue... I'v even bitten mne. Try not to panic... Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2012 Posts: 50 | Thank you for replying. The waiting game is the worst. I truly hope I just injured my tongue. To think after all I've been through to lose it all so quickly.
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | Joined: Jul 2012 Posts: 50 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2012 Posts: 50 | Going to see my oncologist tomorrow morning. It's driving me crazy. I'm hoping it's nothing or she can tell its not cancerous. Hoping I won't have to have any tests that I'll have to wait for results for.
Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Glad your appointment is so soon! Please try to do something fun (maybe a movie or shopping or both) this afternoon/evening to distract yourself. Best wishes, Jean
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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