| Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | David - I would have thought the same thing about the biopsy - but it actually, it depends on which tonsils are suspect. In my husband's case, a biopsy, not a full resection was performed. Because of the vascular involvement in adult tonsils, even a biopsy is not taken lightly.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Jul 2012 Posts: 6 Member | OP Member Joined: Jul 2012 Posts: 6 | Is it normal for the pain to subside when drinking fluids?
| | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | You really can think annd worry yourself to death about this. Find an ENT that is familiar with HPV and have the scope done. That being said...Kevin's scope was fine, they didn't see anything. He had a HUGE lymph node though, like the size of an egg and I made them do an MRI. Are your lymph nodes ok? Find a doc to relieve your mind. Keep in touch, Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | As old as I am I'm amassed that I can still learn things. Thanks for that info Maria. When Moffitt suspected either my BOT or Tonsils as my Primary they put me under to find out and they told me that they were going to probably just take my tonsils, you know "cause we don't need them anyway". Well I woke up to my wife saying they found my Primary at my BOT and stopped before they took them.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | I'm way older than you, David, and I am still amazed at how I am still learning things, especially here! I've learned it's really important to keep one's mind open in case something interesting or helpful can still get in there. No matter how dark things get, there's always a chance to find that light at the end of the tunnel!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jul 2012 Posts: 6 Member | OP Member Joined: Jul 2012 Posts: 6 | Hey Guys,
Just wanted to give an update. I went the ENT today. I was told that I more than likely have TMJ, since most if not all my symptoms pointed to that. Makes sense, because when I went to the dentist not long ago, they said I should get fit for a mouth guard because they could tell I was grinding my teeth. The doctor looked in my throat and in my nose (said he didn't feel I needed a endoscopy), and also ordered some allergy testing.
Since my last post, I have been taking Prilosec, which has really helped my ear pain, because I do think I had a bit of acid refulx as well. The meds have helped me tremendously, the point where I go full days with no pain.
I have two dogs that also sleep in the bed, and both shed, which have contributed to my allergies as of late. The ENT said this could also play a role in the ear, and throat pain. He was pretty confident, and I didn't feel rushed. I was able to ask all the questions that I had in here, and he answered them knowledgeably. I am on my 8th day of Prilosec, and it's working so well. I think this pain will be resolved really soon.
Thoughts? | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | So glad you are doing better ! 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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