| Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | I'm new here also. I'm hoping someone can give me some insight into my issue. First, I am undergoing extensive dental work right now. The hygienist had checked my tongue, etc. for any issues about a month ago and nothing was found. I have had a small bump I can feel with my tongue on the lingual frenulum below my front teeth. In the past it has somewhat gotten a little swollen. I could press on it and it would go down but sometimes swell again. Recently I punctured it and it bled a little and now is white in that area (I'm assuming it's healing). I'm using salt water rinses to heal the area. Does anyone know what this could be? Could it be a blocked duct? I'm hoping it MAY be something simple. I have smoked for a long time...yuk!!! Have tried to quit unsuccessfully. I don't get a fuzzy feeling w/the dentist doing my work right now, so I'd rather pursue other avenues for help. Thank you. | | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Also, the little bump doesn't always seem prominent...just sometimes. | | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | This has been noticeable to me for a few years now. | | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Also, if anyone has any input, I would really, really appreciate it as I'm quite nervous about this. Thank you!!!! | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | First, calm down! Any sore that comes and goes is likely not cancer. If a sore has been in your mouth for at least 2 weeks and not gone way then its time to get checked by a professional. I would suggest seeing an ENT (ear, nose and throat doc). I would doubt that a cancerous tumor would be in your mouth for years without you having any other serious consequences.
Smoking.... you probably already know what Im going to say. QUIT!!!! Let this be your wake up call. There are hundreds of chemicals which are irritants added to tobacco products. Any one of them alone could be whats bothering your mouth. Many of these irritants are known cancer causing agents. I am a former smoker myself. I quit cold turkey when I was on my way to get a feeding tube. Stupidity is why I am now disfigured and live a very different life than before I got sick. I almost died all because I smoked. Dont let this happen to you. Call 1 800 quit now or check out the CDC's Tips From Former Smokers website. You can see what I look like and why I am telling you to quit. I wouldnt wish oral cancer on my worst enemy! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Thank you for responding. I have read several of your posts, and you are a very kind, compassionate person. You are helping many people. I was concerned about the white part right now. I think it may be healing from my puncturing the area (stupid as I am!!). I couldn't figure out why a small bump would become prominent and then subside when pushed on it. Believe me, your posts about quitting smoking are hitting home. But, you are also making me feel somewhat relieved. I guess I need to wait a while to see if the white disappears then. Thank you for all your time and effort on this forum!!!
Last edited by dsing; 08-10-2012 10:52 AM.
| | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Can someone give me insight into the bump that will go down w/pressure? | | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Also, the white area is somewhat going away (I think some was from salt water). There is now one oval (round) white spot right in the center with a translucent bubble in the middle. Any ideas? | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Sometimes tastebuds swell and such. Try not to worry, 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | I don't think it's tastebuds because it is on the lingual frenulum, not the tongue. Right now the white has subsided, I can scrape it off with my finger...so probably from salt water. But there is a small round bubble there at the very end of the frenulum near my gum under the bottom teeth. I was hoping Brian Hill might be able to help as posters have indicated he has a lot of dental knowledge. Thank you! | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Not a dentist here but I would resist puncturing and scaping bumps in your mouth. Let your body heal these things the way it's genetically programmed to respond and when that doesn't work then seek the advice of a trained healthcare professional. Try an ENT for another opinion.
And also QUIT as in NEVER EVER USE TOBACCO AGAIN. There are many many people that can never complain again about quiting because they are dead from tobacco.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | I know it's stupid to be touching and fooling w/my mouth....I just get really anxious. I had wanted to see if the white would come off. Anyway, any thoughts on the area that has a transparent spot?...Brian, if you're available? Of course, I know people here can't make a firm diagnosis....just your thoughts. Something that could steer me in some type of direction, relieve my mind or indicate I should see an ENT asap. I was hoping to wait 10 days or so to see what it's like then. Thank you for all your input!!! Also, the drilling me about quitting smoking helps....I'm cutting back right now....and do hope to quit ASAP.
Last edited by dsing; 08-11-2012 09:03 AM.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Dsing: The way I see it, you have two choices:
1) You could wait a few days and see how your body heals the area in question. Don't poke at it. You might make it worse. OR
2) You could cut down on a LOT of anxiety if you get yourself to an ENT or an oral surgeon who has experience with oral cancer. The sooner you do it, the sooner you can relieve the anxiety you are experiencing.
It could very well be nothing serious, but I don't do anxiety very well, so if it were me I would pick #2. And PLEASE quit the tobacco. Just DO it!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | For anyone's input on possibilities....today the area is a small spot like a translucent bubble (pimple) on the lingual frenulum near the gum area. It seems to be less irritated with less white around it.
It seems as though I have seen this before....and that it has come and gone???? But, I can't remember. Christine has said that if I have had issues for a few years that I would have noticed some noticeable problems within that time frame.
I'm nervous about finding out what it is....really nervous. We only seem to have a few ENT's in our area.
Last edited by dsing; 08-12-2012 06:52 AM.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | My advice is also to go see a doctor or a dentist who can look at your oral lesion. But since you just want "possibilities", here is a link to almost all of them with pictures A Guide to Common Oral Lesions Or a nice powerpoint in Pdf Lumps & Bumps 101 I'm sympathetic here but really you need to see a doctor or dentist or you will drive yourself crazy Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | 1. Stop looking at it;
2. Stop trying to diagnose it;
3. Stop violating it;
4. Make an appt w/ an ENT first thing tomorrow; and
5. Stop using tabacco....cutting back is not quitting. Telling yourself that you will NEVER use tobacco EVER again and following thru is the ONLY definition of quitting acceptable.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Thanks for the links. Yes, I am going to go crazy!!! I can see where there are too many possibilities to give me some type of indication here. I'm just nervous!!! | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | D,
your nervous reaction is actually hurting your immune system due to hormone response. Chill the f out, take the steps David laid out for you above as it's all you can do. Worry, stress, obsessing is just going to hurt you physically, mentally and emotionally. Get a Xanax or ask a hippie friend for a brownie and watch some cartoons dude, or Pineapple Express, whatever takes your mind off of it until you get answers.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Well, I'm a little shocked by this last reaction to my posts. Some info. is helpful, but I'm not about to take anything to put me in a zombie zone. I've noticed other posters have been very anxious too, so it's not unusual. | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | D,
I'll apologize as you don't know my sense of humor nor posting style...lighten up is the message
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Ok, Eric, thanks....understand what you're saying. Hope you're doing well and thanks for the input! | | | | Joined: Aug 2012 Posts: 16 Member | OP Member Joined: Aug 2012 Posts: 16 | Here's an update (kind of). The area on the end of the lingual frenulum under my teeth towards the gum looks like a very small spot and is translucent. There doesn't appear to be white (from what I can tell). I am continuing to have dental work done this week. Both the hygienist and dentist saw the area closely today, and I'm scheduled to return tomorrow. The dentist did not say anything to me (yet anyway). I would think he would say something if there were an issue ??? I'm not being forthright because I'm scared. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Unfortunately not all dentists are familiar with oral mouth problems including something as serious as oral caner. Dentists treat teeth and many focus on cosmetics.
The rule goes if you have a sore in your mouth that has been there for 2 weeks or more then it is time to get it checked by a professional. I would suggest seeking out an ENT who deal with oral cancer. They will be the best place to go to get diagnosed. A patient cant always expect their doctor or dentist to mind read, a patient needs to speak up and be their own advocate. By being silent about your situation it is NOT helping you. Several members including myself have told you what needs to be done. All we can do is give you advice, its up to you to follow thru and take care of yourself.
I hope you have stopped smoking and given your mouth a chance to heal.
Last edited by ChristineB; 08-13-2012 05:50 PM.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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