| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | We are not ENT's here so we really can't tell what procedure, if any, may be recommended. I had thought you were going to a different ENT? I saw 5 different docs and got 5 different treatment plans before I decided which way to go. My concern is if this ENT didn't see anything wrong the first time will he be more inclined to read his previous notes and reach the same conclusion leaving you to wonder just as much as you do now. Presently HPV can only be tested (orally) once cells have been confirmed as cancerous.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2012 Posts: 5 Member | | Member
Joined: Aug 2012 Posts: 5 | I do want to see a different ENT but I can't afford (at the moment) the cost of going to one that isn't covered under my insurance  I'm going to make an appt with the same one because it's the quickest thing I can do at the moment. I could wait until I've saved enough, then see a different one.. but hopefully I can demand/convince my current ENT to at least do a biopsy on the things back there. I saw him 6 months ago, so he should at least have some sort of medical curiosity why they are still there (i'm hoping) If he refuses to do any sort of testing, then I will go from there.. it's just the only real option I have on the table currently. I did a bit more research, and I found something that looks EXACTLY like what my lumps look like.. it's called "chronic granular pharyngitis" Not saying this is what I have, but at least it's something to start with? We'll see! | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | What about going to an oral surgeon for the biopsy? That's who my son's dentist referred him to when he had a suspicious lump under his tongue.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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