| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | I've sent Erik this list for the app of the most popular liquid drinks prescribed for PEGs and the two big OTC versions with their Calories Protein (g Fat(g) Carbohydrate (g) Water (ml) per can. It dawned on me that it might be too NorthEast USA centric. Please take a look at this list and post drinks or prescription nutrients that you used as a patient or caregiver. Don't worry about filling out the information on calories, etc, I can dig that up. Just the name is all I need if I am missing something used overseas or elsewhere in the USA Prescription Compleat Fibersource HN Isosource 1.5 Isosource HN Jevity 1.0 Jevity 1.2 Jevity 1.5 Nutren 1.0 Nutren 1.0 w/Fiber Nutren 1.5 Nutren 2.0 Osmolite 1.0 Osmolite 1.2 Osmolite 1.5
Over the Counter Nutrition drinks Ensure High Protein Ensure Muscle Health Ensure Nutrition Shake Ensure Plus Ensure Clinical Strength Boost Boost Glucose Control Boost High Protein Boost Plus Boost VHC
Thanks Charm
Last edited by Charm2017; 08-02-2012 08:48 AM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Two-Cal with fiber is 560 calories per can and is a popular prescription formula. How about checking on the Oley Foundation's list? They have tons of formulas listed. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Fortisip and fortisip multifibre. Seems to be the formula of choice here in NZ. Cheapest I guess. Those who can drink the formula but don't like the taste can get Ensure and Ensure plus on prescription.
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Oct 2011 Posts: 67 |
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation. Leukoplakia Bx Feb 2011 - Lichen Planus. Bx May 2011 - Hyperplasia. Same sample retested as SCC. June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia. T3N1M0 Stage IV. | | | | Joined: Feb 2012 Posts: 151 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2012 Posts: 151 | After realizing the canned formula for my husband was synthethic food and a lot of sugar I tried adding fresh carrot juice and other fruits and veggies along with protein shakes and yogurt. (I used a good food processor and ran things through a strainer to make sure.) He had trouble maintaining weight even with over 2500 calories so I tried adding the more healthy calories. At first I was nervous I would clog the tube but we always got everything down it just took awhile longer at times. A nurse told us Coke would take care of any clogs but my husband found a chop stick fit great to give a little more push when needed. Thank goodness the feeding tube is now a thing of the pass but was much needed then especially since he did lose over 35 pounds. He never thought he'd be back at his college day weight.
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Thanks Christine. I had seen TwoCal on the Abbott site but it was not under their Cancer nutrition section. But since we want the app to cover what people drink or put down their tube, I'll add it. sounds like you have drunk it. I'll recheck the Oley site but like the Abbott site and many nutrition articles many of the ones I left out are designed specifically for the other diseases besides Oral cancer that put patients on a feeding tube. such as Celiac Disease, Diabetes , Gastrointestinal , HIV/AIDS ,Inherited Metabolic Disorders , Kidney Disease ,Osteoporosis and Wound Care Which is why I left them out. Depending on the response to this thread, I will definitely include more. Thanks for taking the time to read the list and help out Charm
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Tamvonk
That is exactly the type of International information I was looking for. I will add them both Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Shauneen
How could I have forgotten Scandishake? Oh yeah, i remember, I hated them - they made me vomit during radiation, so I subconsciously blocked them out. But they are popular and I will add them thanks for helping out here. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Terrib
I'm a big fan of Blenderized Diet and my Vitamix, so I agree. I think a couple links to the BD sites/forums or at least a paragraph on the introduction/text part on BD as an alternative to the canned corn syrup will be good Glad your husband is off the tube Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Okay OCF readers. The above posts are a GREAT start. Even if it's not on the regular lists or prescribed for something else, if you or your patient DRANK it in lieu of food, please share. We want the list to reflect what happens in the real world not just what is marketed. So look over the list and chime in Together we can make this the best list ever Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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