| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | It's ok to be fluffy, Angelia - especially when you are sharing that beautiful fluffiness with a new little one growing inside.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2010 Posts: 153 "OCF Canuck, across the pond" Senior Member (100+ posts) | | "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | I lost 20 lbs in treatment and two years on I'm still about 15 less than PT (pre-treatment), but I also bicycle 70 miles/week in 7-mile sprints, so I think that's helping keep the weight off. My wife thinks I'm still a bit too slim, which makes for a great excuse to eat ice cream! I prefer Mackie's vanilla, with Tia Maria and Canadian maple syrup on top. Mmmmmmm
BMI = 23 which is a lower BMI than 92% of males in my age group in the UK (I'm actually American, but I live in London now). It's 91% when compared to the US, not much different.
Who know there was a benefit to having cancer?
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
| | | | | Joined: Apr 2011 Posts: 267 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2011 Posts: 267 | My BMI is 17 which is obviously lower than I would like it to be. The site said I am most like someone from Ethiopia. I was expecting it to say, "international supermodel," but whatever.
Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Fluffy. Love it. AM I seriously the only one who GAINED weight post treatment?? Good Lord. With the lack of teeth to process carrot sticks and no tongue to eat salad (isn't it amazing how lettuce can WELD itself to the inside of your mouth?) my diet consists of soft foods like puddings, and smoothies, eggs, processed meat (steak in a tube and very mushy pasta. Al dente be damned!~~ How have others not gained weight??
I love CancerCare Manitoba. Each time they weigh me they give me a high five. Where were these people all my life? They say it is okay to have a bit extra in case of a recurrance, but that is getting to be a larger "bit extra".
Seriously.........no one else GAINED WEIGHT??
Extra fluffy Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Donna - I think it's wonderful that you were able to accomplish this even with lack of teeth and no tongue! Sounds like you are doing really well. It should be great encouragement to others trying to gain weight!
You are not the only one, tho' who gained weight post treatment. Almost six years post Tx my son is definitely looking very "fluffy" but he still has teeth and most of his tongue and very happy with his new life. I did forward him some great info from EricS' posts on how exercise would be good for him, so I'm hoping he takes note. I'm not his Caregiver anymore so it's his call on what he does about the fluffiness, but I still care about his being healthy.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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